Does anyone else with Wegeners have fluid re... - Vasculitis UK

Vasculitis UK

7,857 members6,880 posts

Does anyone else with Wegeners have fluid retention?

ISABEL12 profile image
5 Replies

I've been having swelling under my right eye but I popped into chemist tonight and spoke to the pharmacist who sad that it was probably the steriods causing fluid retention!! Has ayone suffered from this? x

Written by
ISABEL12 profile image
ISABEL12
To view profiles and participate in discussions please or .
5 Replies
John_Mills profile image
John_MillsVolunteer

probably the best thing to do is get it checked. Any swellings around the eyes should be checked by your WG consultant as the consequences of eye involvement with WG can be serious. It is better to be on the safe side.

deniseann profile image
deniseann

I recently had the same problem with both my eyes.swelling and a few days turned out to be an infection too .

Anti b ontiment worked well .

Essex-jill profile image
Essex-jill

I too experience swelling under both eyes due to the involvement of my nose with WG ( saddle nose deformity )and sinus problems . I agree with John and Susan its best to get it checked out.

ISABEL12 profile image
ISABEL12 in reply toEssex-jill

I went to my GP tonight and she didn't think it was fluid retention she is referring me to eye specialist. I also have sinus problems and saddle nose deformity due to WG but my swelling is just under my right eye x

9682maria profile image
9682maria

I would get this checked I had it In my nose with which caused saddle nose but also my sinuses got so inflamed the skin in the corner of my eye produced a hole which opened up and caused me to catch mrsa whilst undergoing treatment. For WG I suffered with great pain my eye dropped and stuck in one position I reluctantly had to make the decision to have it removed between head pain and my eye I couldn't catry on so anything to do with your eyes don't overlook it mine was so aggressive it only took weeks to spread I'm now 47 had it 9 yrs but had 5 operations to try save it but it's a destructive disease but at least now I can sleep better it's been over a year ago I had this procedure and still can't look at my face in a mirror I would not want someone else to go through this procedure. Don't panic after reading this but be aware of your sinuses being inflamed my eye was very swollen in the begining but my distruction was also made worse by mrsa x

Not what you're looking for?

You may also like...

Living with wegeners

Hi my name is Russell I have been living with wegeners for a year now when I was diagnosed I was...
russellk3 profile image

Does anyone else have a problem with fluorescent lighting?

Hello All I have for a long time noticed that the type of fluorescent lighting in shops and...
Galaxy2 profile image

Does anyone else have permanent red spots?....

I get the odd rash on my legs and tummy. It stays a few days then goes, but I have notice the odd...
CathT profile image

Hi I have been diagnosed with Mononeuritis multiplex does anyone else have this?

Its a Peripheral neuropathy, vasculitis of the peripheal nervous system, from what I understand the...
logic38 profile image

Daughter diagnosed with Wegeners Granulamotosis

My 14 year old daughter was diagnosed with Wegeners in January of this year after being...
runtim profile image

Moderation team

See all
zoe69 profile image
zoe69Administrator
Suzi70 profile image
Suzi70Administrator
JaneLE profile image
JaneLEAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.