Morphia type of scleroderma

[mamajo089]

does anyone have this kind? What are you doing for it How long have you had it. Has it progressed? A worried Mom here.

[DebbeeDee]

I never heard of Morphia

[mamajo089 in reply to DebbeeDee]

It is a rash and thickening under the skin. Itches and she had biopsey from dermatologist and confirmed Morphea. It is an autoimmune like sceroderma but so far just this type.

[zenabb]

I don't understand the question. What is morphia?

[mamajo089 in reply to zenabb]

An autoimmune disease a itchy rash and thickening under the skin. She has it on her sde and back.

[dordle]

Hi Mamajo, I had a couple of reddish patches on my back, that were sometimes itchy, in my early twenties but they were never commented on by any doctors. It was only when I was diagnosed with Scleroderma about 5 years ago that they were recognised as morphea. If you go to the Raynauds & Scleroderma Association website you can download a leaflet on Localised Scleroderma. Hope that is useful to you.

[mamajo089 in reply to dordle]

Thank you for answering my questioin. I had misspelled it and You knew what I was talking about. That was very hlpful

[pudley14]

Hi, I have had morphea and scleroderma for 15 yrs. For me morphea only discolurs my skin, where as scleroderma makes it go tight and can crack & peel. The only time it spread was as I had a growth spurt in my teenage years. Doctors should b able to control the spreading with medication as mine hasn't got any worse for a few years now.

[mamajo089 in reply to pudley14]

Were you diagnosed at the same time or did the Morphea progress to the limited scaleroderma? So far they said after the biopsy that it is Morphea. She still has the rash and it itches and has not went to a rhuematologist. She said that she doesn't need to see one as yet/.

[helenclarke]

I have morphoea, it started when I was about 12, on my forehead. It lasted for about 8 years, and resulted in a dent in me head and forehead. It was diagnosed for a long time, and when it was, I took cyclosporine for 6 months. It appear to have stopped progressing now and has been stable for a while. Having said that, I think it may well have stopped progressing before I started taking the drug. Hope this helps a little!

[mamajo089 in reply to helenclarke]

Thank you for your reply. I will try to research this further.

[RosemerryVenet]

I went to see a dermatologist as I thought I had excema, but he took a biopsy and said it was morphea. I also had never heard of it, but he explained the connection to scleroderma, and I have been diagnosed with limited scleroderma.

[mamajo089 in reply to RosemerryVenet]

Were you diagnosed with the limited scleroderma at the exact same time? My daughter has the Morphea and so far that is all they diagnosed. I want her to go to a rhuematologist but she said the dermatologist can take care of ti. Di you agree?

[joba in reply to mamajo089]

My niece has morphea and goes to a dermatologist and rheumatologist. Try both.

[Loobyloo]

Hi

I was diagnosed with localised morphea when I was approx 11-12 years old, intially started off with one patch on my back but, progressed to 4-5 patches on the front of the trunk of my body. I had another lot appear about 5 years ago in the same area. I have now had the condition nearly 25 years. A Consultant at the end of last year, diagnosed me with General Morphea, which means when you have a number of patches in more than 2 areas. Other than the trunk of my body I have one on the back of one of my legs just below the knee but, none anywhere else. I have been prescribed a strong steroid cream which is helping to stop the new ones from growing bigger and helping them soften and fade. The consultant was very helpful in aiding my understanding of the condition. Morphea is a form/type of Scleroderma and is essentially thickening of the skin (the patches).

The consultant informed me that there is still little known about Morphea, its cause or cure but there are numerous things that can be done to help treat it, it isn't hereditary or contagious. The patches appear red in colour initially with a yellowy hard centre (they look like bruising), they can hurt to the touch at first (like a bruise) and can be itchy but, eventually soften and fade to a pale brown colour and just leave your skin discoloured. I have not experienced any other problems in all of the time I have had it and I have been told that in many cases the patches can fade altogether.

The Localised Scleroderma leaflet on the Raynauds & Scleroderma Association website is definitely useful.

I hope my perspective and experience is useful in aiding your understanding and eased your worry.

[mamajo089]

Thank you. I had misspelled it but you were right on target about what I needed to know. I will go into the site and read the leaflet Again thank you.

[mamajo089]

thanks for answering.

[RosemerryVenet]

No, not at the same time. He did a nailfold capillary test and those results showed scleroderma.

[joba]

My niece has morphea and I have systemic scleroderma, so maybe there is some heredity involved? She is getting cortisone treatments (shots) to her foot (where she has the morphea). She has had some pain with it. Other than that, I don't believe she is receiving any other treatment for it.

[mamajo089 in reply to joba]

Thank you for answering my question. So far she has not been given any treatment by the dermatologist. Still has the rash and it itches so applys moisurizer cream , an over the counter one. I want her to see a rhuemtologist. Dermatologist felt he could handle it. What do you think?

[rebeljan22]

My daughter was diagnosed at 9 and is now 12, she had two patches on the trunk of her body. We have treated her with a steriod cream as needed. I actually think her skin morphea has faded and looks really good at the moment. We have been blessed as she as no other symptoms at this time.

[mamajo089]

Thank you for responding. That was helpful to me.

[mellis_mum]

Hi my 15 year old daughter may have morphea. She has had first signs for about a year now. New patches appearing regularly she has them on her leg stomach and back over her shoulder.