i have serve primary raynauds.. what why do i have really bad itchy rash at times on legs and arms.. looks like i ve just burnt my self ..

[fairygoddess83]

it really does feel like they are on fire.... plus on one of my legs the rash looks like a butterfly which was funny xx plus i hate it when i have fat fingers .. usually they are slim .. but for the last four days they have been swollen like mad... plus when ever i feel like im really hungry i ll go to eat something then two mouths fulls later i feel like im full up and cant eat any more ... im trying to put weight on hoping i will feel less cold but it doesn t help my body is soo confussed one minute its like i ve never eaten .. then start to eat and im so full eater a few mouth fulls that i feel really sick like i ve eaten too much .. hmmm anyone else get any of these with primary raynauds

[LynnCox]

Have you discussed your symptoms with your GP or a rheumatologist?

I regularly have the itchy burning on my lower legs and I find using a good moisturiser on the itchy area helps. Also find shaving my legs every few days helps. I will be discussing it at my next appointment as sometime I scratch so much I bleed.

[fairygoddess83]

im not having much luck with my doctors at the mo .. i ve told him everything what is going on he just laughed told me to put some more clothes on and is refusing to give me any other med's the nifidphine but like i told him i cant take it due to side effects.... let me know how you get on with your gp... xx

[britty]

I am on alot of medication fluxotine lercandipine serederin plus now cod liver oil omega fish oil and evening primrose for the menopause years ago I was on nifedipine going back 20 years maybe and it made me flush and so ill it was awful then I was on hypovase till I became immune to it and now soon I hope to be of some medication as soon getting this ilprost do you gain weight from this as for years I have struggled with my weight and now I go to gym and jazzersize as exercise is important when you have raynaulds.. I dress now in layers as one minute too hot then frozen and so it goes on my whole body feels like it is on fire the attacks can be so severe that i collapse from them and outsiders dont understand all in your head even though having attack infront of them some people are concerned but even my doc realises it is time I had proper help hence Royal free hospital .

[living-the-dream-ssc-ray]

Hi fairygoddess et al ! Ive just seen this post as I have been to see Prof Denton at the Roayl Free this week !

He is a true blessing to anyone with Scleroderma and raynaud's !

so fairy goddess, get your fairy wings to him!! at your next GP app tell your GP you want a referral to See Prof Denton at the Royal Free. This is your perogative - patient power ! As for the other GP you went to see that would only prescribe nifedipine and nothing else (I cant tolerate it either) you need to file a complaint against them - as this is total negligence to you and the GP is lacking in their duty of care to you. Good on you for trying to educate the GP about the symtpoms !

the itchiness and swollen fingers sound similar to the initial symptoms of scleroderma so i would suggest you get this checked out asap ! Scleroderma can be detected by the presence of ANAs in your blood; so demand that you get a blood test on your next visit ! I saw on your fb status you are having a great day today so wehoo dont let somebodyelse's ignorance bring any rain on your parade ! Lots of love and fairy dust xx