PSP Pain: My husband was diagnosed with PSP... - PSP Association

PSP Association

9,729 members11,604 posts

PSP Pain

ladydog255 profile image
1 Reply

My husband was diagnosed with PSP in Jan. 2019. He had an MRI after complaining about headaches. The pain has not lessened, and now includes his jaw. He complains that his heads feels like it's going to explode, and it hurts to move his jaw to chew. And he has become sensitive to light and sound! He tales Tramadol for his degenerative spine (after breaking it 40+ years ago) and Carbidopa-Levodopa, neither of which work on the headaches. So, he sleeps most of the time. Anyone else suffer these issues? Any suggestions?

Written by
ladydog255 profile image
ladydog255
To view profiles and participate in discussions please or .
Read more about...
1 Reply
sammy90210 profile image
sammy90210

sorry about the difficulty - you must have discussed about medication with the doctor as well but recently I heard about people getting relief with cannabis based products - of course, with a PSP patient it's much more difficult to manage but you can check with his doctor if it's OK to try - there are some ointments, creams and liquids for oral consumption too

I recently saw this and it could give some idea (we don't have such pharmacies where I live) - youtube.com/watch?v=05jEknL...

Not what you're looking for?

You may also like...

PSP and Hydrocephalus

Hi, I'm new here and appreciate My husband has both PSP and Hydrocephalus. The hydro was...
Hukilu profile image

Pain with PSP

I have read several posts that mention a person with PSP having pain. My husband (Dx 3years ago)...

PSP deterioration 😢

my husband, who has just turned 66 was diagnosed with PSP after thinking it was Parkinson’s for 3...

Psp help

Hi all, My dad is 79 and was diagnosed with PSP in early 2013. He has deteriorated significantly...
Mp100 profile image

CBC vs PSP

My husband is declining rapidly . He still does not have a final diagnosis and his movement...

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.