Leaning forward : My brother has begun... - PSP Association

PSP Association

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Leaning forward

Sistergail profile image
3 Replies

My brother has begun leaning over when walking and even when he is sitting. He says he doesn’t know why he can straighten up. It makes him sometimes speed forward as he is walking. His walking is extremely slow and he is somewhat rigid.

His PSP was diagnosed in Dec. 2021 so we are early into this. His vision is very low. He had been diagnosed with Glacoma many years ago.

Do you think the glacoma is a symptom of PSP?

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Sistergail profile image
Sistergail
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3 Replies
easterncedar profile image
easterncedar

Hello. I don’t think glaucoma and psp are linked,. It’s unfortunately possible to have more than one illness at a time. The leaning is very common with psp though, and isn’t subject to the patient’s control. Physical therapy can be helpful. The LsVT big program was very good for my guy. If you can manage something like that, I recommend it. Can save some falls and be comforting, that is, to engage in something positive. Good luck. Hang in there, ec

AJK2001 profile image
AJK2001

I'm not aware of glaucoma being linked to PSP but vision problems are common. Many people find that their eye movements are restricted or slow leading to problems focusing and a narrowed field of vision. Eyes may also move at different speeds causing double vision.My Mum couldn't move her eyes to look down, so she would walk bending forward as moving her head and body was how she moved her eyes and the only way she could see her feet.

Hi Sistergail!

I'm sorry PSP/CBD/ etc. has entered your family.

The suggestions of my "chat" colleagues are wise and based on their different experiences. In my case they have been very helpful.

On this case I agree with "easterncedar" and "AJK2001"

These kind of diseases manifests theyself in a similar but different way in each patient. The participants in chats like this offer practices and solutions to learn from, and through the "trial and error" method, achieve a quality of life with interesting moments despite everything.

I am not a phisicyan.

During the 8,5 years in which we was living with PSP I have been collecting our own experiences, symptoms and solutions and that of other members of the chat to offer some notes as a suggestion to PSP/CBD patients and caregivers. The mentioned notes are made with good will and with the best technical criteria that I could contribute, thinking above all in the support of the caregivers

Wishing the best for you and your family I am sending by the private mail of this chat our experiences and our informations .

Hug and luck.

Luis

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