Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for February 2020

Frustration

I feel like I’m failing my husband, after reading the post on here. I had my lo in a exercise class but saw no improvement so he stopped. He sleeps from 8/9 pm...

I feel like I’m failing my husband, after reading the post on here. I had my lo ...

•4 years ago

Spring in Philadelphia

These have been waiting to pop. They did today. They are about a month ahead of time. I dread what summer will be this year. We have been getting off easy the...

These have been waiting to pop. They did today. They are about a month ahead of ...

•4 years ago

Just in case....

If you are longing for some snow, we can spare a bit. I was out walking the dog and could see more snow coming over the mountains. Ron PS: as of right now...

If you are longing for some snow, we can spare a bit. I was out walking the dog...

•4 years ago

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She is home...

My mother Elaine, the most beautiful mom ever, passed away at age 72 on February 12, 2020 exactly one year to the day after her confirmed diagnosis. I have...

My mother Elaine, the most beautiful mom ever, passed away at age 72 on February...

•4 years ago

Finding Posts on Health Unlocked

Hi folks It's been quite a while since I posted this. I hope it's helpful to repeat... The Health Unlocked search engine is fairly poor. To find posts on a...

Hi folks It's been quite a while since I posted this. I hope it's helpful to rep...

•4 years ago

Muscle tone

Hi, sorry it's a long message. My husband was dx in October he had the eye exam, and saw the neurologist both agreed that he had psp. Since then he has lost...

Hi, sorry it's a long message. My husband was dx in October he had the eye exam,...

•4 years ago

New to the group.I'm new to this site. My lo was dx in August of 2017 with PPA and FTD, he then was dx with PSP in October of 2019.

I'm new to this site. My lo was dx in August of 2017 with PPA and FTD, he then was dx with PSP in October of 2019. He is getting weak and has a lost 8 pounds....

I'm new to this site. My lo was dx in August of 2017 with PPA and FTD, he then w...

•4 years ago

Scotland Family and Friends Day Programme Confirmed

The programme for our FREE Family and Friends Day in Stirling, Scotland on Saturday 14 March has not been confirmed. The day has a theme of 'Communications in...

The programme for our FREE Family and Friends Day in Stirling, Scotland on Satur...

Administrator•4 years ago

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Daunted by paperwork

I am currently sole carer for my husband who was diagnosed with PSP a year ago but showed symptoms as long ago as 5 years ago. We live on a state pension but...

I am currently sole carer for my husband who was diagnosed with PSP a year ago b...

•4 years ago

Diagnosed with psp what now?

hUSBAND DIAGNOSE WITH PSP TODAY. Where do I start how do I support him. What good tips can you give? What to expect of the condition, what can be done to help...

hUSBAND DIAGNOSE WITH PSP TODAY. Where do I start how do I support him. What goo...

•4 years ago

Adventures in neverland

My husband is in a longitudinal study for PSP and we had our annual review..both patient and caregiver. My husband who is 3 yrs into the study, had two session...

My husband is in a longitudinal study for PSP and we had our annual review..both...

•4 years ago

PSPA 5K Your Way

Our virtual 5K for PSPA is returning in March for its third year! Whether you run, walk, jog, skip or push, our virtual event is the perfect event for...

Our virtual 5K for PSPA is returning in March for its third year! Whether you ru...

Administrator•4 years ago

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Short update on MIL

She has completed her 6th, and last, round of chemo. While her blood marker dropped dramatically it's nowhere near what would be a remission. We found out at...

She has completed her 6th, and last, round of chemo. While her blood marker dro...

•4 years ago

Muzzy Head

Hi all, I only joined your forum yesterday. It’s is nearly 3 years since I first took my husband to the doctors. The initial diagnosis was depression but now...

Hi all, I only joined your forum yesterday. It’s is nearly 3 years since I first...

•4 years ago

Kathy is near the end of her PSP journey

As I write this post my thoughts are with Kathy and other carer's looking after. your Love one at home , working tirelessly,long hours, you deserve the highest...

As I write this post my thoughts are with Kathy and other carer's looking after....

•4 years ago

The ever changing World of PSP

Probably the hardest thing for me as a caregiver is the sudden weekly and sometimes daily changes. A year ago I truly though, okay I can deal with this, if...

Probably the hardest thing for me as a caregiver is the sudden weekly and someti...

•4 years ago

Staying Ahead of PSP

My wife was diagnosed with PSP in 2012 at age 60. Here is a list of treatments we have employed to maintain a quality of life for her. As the disease has...

My wife was diagnosed with PSP in 2012 at age 60. Here is a list of treatments w...

•4 years ago

My dad's gone.

My 73 year old father died this past Monday February 3 from PSP. We notice a decline 3 days before his passing he was sleeping more than usual and it was...

My 73 year old father died this past Monday February 3 from PSP. We notice a dec...

•4 years ago

Beautiful moments

Thought I would share one of the moments yesterday --- Momma loved all the fragrances, and the tulips were her most favorite! OH!!! We are ready to move...

Thought I would share one of the moments yesterday --- Momma loved all the fragr...

•4 years ago

Stop and smell the roses ...

Definition: To relax; to take time out of one's busy schedule to enjoy or appreciate the beauty of life. Yesterday we pulled out the boots, gloves, winter coat...

Definition: To relax; to take time out of one's busy schedule to enjoy or apprec...

•4 years ago

Its a Thumbs Up week ...

So far so good --- our stand assist unit arrived this past week, and I have to say that my Momma is all smiles as we navigate and learn to use this new ride....

So far so good --- our stand assist unit arrived this past week, and I have to s...

•4 years ago

Hospital indefinitely?

Hi, my father (82), a PSP sufferer since 2014 diagnosis (Parkinsons prior to that for 3-4 years) was admitted to hospital last Tuesday and has been struggling...

Hi, my father (82), a PSP sufferer since 2014 diagnosis (Parkinsons prior to tha...

•4 years ago

My dads last days

Hello,It’s my first time on here. I had joined a while ago but hadn’t been brave enough to write anything. I am in desperate need of some advice. To cut a...

Hello,It’s my first time on here. I had joined a while ago but hadn’t been brave...

•4 years ago

OXFORD STUDY OF QUANTIFICATION IN PARKINSONISM

Would you like to take part in an Oxford study of Quantification in Parkinsonism? OxQuip are looking for patients with Progressive Supranuclear Palsy to take...

Would you like to take part in an Oxford study of Quantification in Parkinsonism...

Administrator•4 years ago

TRS-A SAFE Heavy Metal Detox

Hello, I am EXCITED !!! I don’t have a lot of time to post right now, so this won’t be as thorough as I would like but I could not wait to tell you all...

Hello, I am EXCITED !!! I don’t have a lot of time to post right now, so this...

•4 years ago

Living in Mexico with psp

My husband was finally diagnosed with PSP last September 2019 having had first symptoms of behaviour changes 4 years ago. He has thankfully retained his sense...

My husband was finally diagnosed with PSP last September 2019 having had first s...

•4 years ago

FREE Family and Friends Day in Scotland

We're holding a Family and Friends Day in Scotland on Saturday 14 March. The event is taking place at the stunning Stirling Highland Hotel and will give you a...

We're holding a Family and Friends Day in Scotland on Saturday 14 March. The eve...

Administrator•4 years ago

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