Short update on MIL: She has completed her... - PSP Association

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Short update on MIL

Dadshelper profile image
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She has completed her 6th, and last, round of chemo. While her blood marker dropped dramatically it's nowhere near what would be a remission. We found out at beginning of January she definitely has dementia and periphal neuropathy. Chemo makes both of those conditions worse so oncologist isn't recommending any more. That being said surgery to remove the tumor and surrounding tissue can't be done because procedure is to start chemo within 4 weeks of surgery. Statistically doing surgery without the chemo shortens life span. The oncologist has basically moved her from treatment stage to palliative care stage.

We've already started setting things up, experience is helping! Adjustable bed, hand held shower, grab bars, toilet seat riser, shower chair, lift chair, bedside table, etc all in place.

Since this is my MIL there are certain aspects of her care I choose not to get involved with. My wife has stated she is not sure she'll be able to handle someone in near/at 100% dependency knowing what I did for dad. After talking to MIL applications to nursing home facilities are in place.

Ron

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Dadshelper
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Kevin_1 profile image
Kevin_1

Hello Ron

Gosh, you have both been through the mill.

It must be tough for you.

We're here for you as much as one can be on a forum.

Best to you both

Kevin

I have told people I never want to do the care giving I did again. I was more than will to do it for Larry but anyone else is doubtful.

racinlady profile image
racinlady

Having done it once, I'm not sure I could do it again. I don't know you are doing it again so soon after your dad. When they say, "when it rains, it pours", they aren't kidding!

Tippyleaf profile image
Tippyleaf

So sorry to read this Ron, seems you have more than your fair share of challenges. Really feel for you and your wife

Take care

Love Tippy xxxx

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