As I write this post my thoughts are with Kathy and other carer's looking after. your
Love one at home , working tirelessly,long hours, you deserve the highest praise
putting aside your own ambitions and interests.Kathy went into a rest. home
In October last. year and has deteriorated quickly.When the doctor told me she has weeks to live ,hit me like a brick,she. sit motionless in a chair ,can be prompted
to open her mouth and swallow mainly drinks,her eyes are shut most of the time
can squeeze my hand accasionly,she's in the sixth year of PSP ,she didn't want a peg feeding ,and is the right decision ,I often play music to her and stimulats her to
wake up from a deep sleep,all I want is for God to grant her eternal peace.
Thank you all for your contribution and love to this website.
Peter
Written by
Birdman34265
To view profiles and participate in discussions please or .
Oh Peter, my heart goes out to you. PSP is so cruel and it is such a hard journey for both of you. Take heart from the fact that when the inevitable happens Kathy will be at peace. It is this thought that sustained me during the last few weeks of Chris's life and my life over the past six weeks.
Hoping that her final days are peaceful and painfree just as my husbands were. I'm sure they feel the love as they gradually fade away and are free of these terribl diseases.
I am sorry to hear of your wife's current condition. This is the time to be with her, holding her hand, talking with her and just generally letting her know you are there.
Dear Peter.......My daily prayers include a quicker journey to a peaceful and painless end from this devastating disease.... my thoughts, love and hugs are being sent to you hoping to give you some peace through this terrible time ....
Dear Peter my love and prayers are with you both at this time but especially you as I know how useless you must feel. Nothing prepares one for the end but like you all I hung onto was that Nigel would no longer be suffering. I will send you a private chat.
In Tim's 1st PSP chronicles I read this :
“Most things will be okay eventually, but not everything will be. Sometimes you’ll put up a good fight and lose. Sometimes you hold on really hard and realize there is no choice but to let go. Acceptance is a small quiet room.” Author Unknown
We are never ready are we. I remember those feelings of disbelief when the dr. said what I really knew. It's so hard. My heart goes out to you. Big hug from Jean xxx
So sorry Peter. My heart goes out to you at this very difficult time. Keep the music going, tell Kathy how much you love her and recall happy memories. W was in his 6th year, I did this with him in his last few weeks and he would squeeze my hand and give a little smile. I felt he passed away with lovely thoughts and knowing he was loved greatly. Praying you find strength for the days ahead and Kathy has a peaceful passing.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
End of a painful journey 
The end of this journey had come
My mum wins her battle against PSP at last!
