Kathy is near the end of her PSP journey

[Birdman34265]

As I write this post my thoughts are with Kathy and other carer's looking after. your

Love one at home , working tirelessly,long hours, you deserve the highest praise

putting aside your own ambitions and interests.Kathy went into a rest. home

In October last. year and has deteriorated quickly.When the doctor told me she has weeks to live ,hit me like a brick,she. sit motionless in a chair ,can be prompted

to open her mouth and swallow mainly drinks,her eyes are shut most of the time

can squeeze my hand accasionly,she's in the sixth year of PSP ,she didn't want a peg feeding ,and is the right decision ,I often play music to her and stimulats her to

wake up from a deep sleep,all I want is for God to grant her eternal peace.

Thank you all for your contribution and love to this website.

Peter

[AnneandChris]

Oh Peter, my heart goes out to you. PSP is so cruel and it is such a hard journey for both of you. Take heart from the fact that when the inevitable happens Kathy will be at peace. It is this thought that sustained me during the last few weeks of Chris's life and my life over the past six weeks.

Sending hugs

Anne

[Birdman34265 in reply to AnneandChris]

Thanks Anne.

[RunPeace]

Wishing all of you strength in this difficult journey.

[Hidden]

My heart is with you and Kathy... sending gentle hugs to you both... Granni B

[Katiebow]

Hoping that her final days are peaceful and painfree just as my husbands were. I'm sure they feel the love as they gradually fade away and are free of these terribl diseases.

Sending love

Kate xxx

[Birdman34265 in reply to Katiebow]

Thanks Kate

[Dadshelper]

I am sorry to hear of your wife's current condition. This is the time to be with her, holding her hand, talking with her and just generally letting her know you are there.

Ron

[Birdman34265 in reply to Dadshelper]

Yes she knows I am there, probably the bad thing of PSP being

trapped in a non working body , thanks Ron

[SusieTess in reply to Birdman34265]

Dear Peter.......My daily prayers include a quicker journey to a peaceful and painless end from this devastating disease.... my thoughts, love and hugs are being sent to you hoping to give you some peace through this terrible time ....

Take care, Kathy

[Tippyleaf]

Thinking of you st this difficult time

Love Tippy xxx

[AliBee1]

Dear Peter my love and prayers are with you both at this time but especially you as I know how useless you must feel. Nothing prepares one for the end but like you all I hung onto was that Nigel would no longer be suffering. I will send you a private chat.

In Tim's 1st PSP chronicles I read this :

“Most things will be okay eventually, but not everything will be. Sometimes you’ll put up a good fight and lose. Sometimes you hold on really hard and realize there is no choice but to let go. Acceptance is a small quiet room.” Author Unknown

Love AliBee xx

[Birdman34265 in reply to AliBee1]

Thank you for your kind words ,l did visit her today she did eat something and squeeze my hand

[SusieTess in reply to AliBee1]

Truer words were never spoken......my daily prayers include a quicker journey to a peaceful and painless end from this horrible disease...

Hugs and peace, Kathy

[doglington]

We are never ready are we. I remember those feelings of disbelief when the dr. said what I really knew. It's so hard. My heart goes out to you. Big hug from Jean xxx

[Birdman34265 in reply to doglington]

Thanks Jean

[Westerngirl]

Big hugs to you.The time will never be right.I hope you both find peace.Susan

[LuisRodicioRodicio]

A big hug.

Luis

[Spiralsparkle]

Sending you much love as you travel this final part of the traumatic PSP journey.

X

[Nanny857]

So sorry Peter. My heart goes out to you at this very difficult time. Keep the music going, tell Kathy how much you love her and recall happy memories. W was in his 6th year, I did this with him in his last few weeks and he would squeeze my hand and give a little smile. I felt he passed away with lovely thoughts and knowing he was loved greatly. Praying you find strength for the days ahead and Kathy has a peaceful passing.

Sending lots of love, Nanny857xx

[Birdman34265 in reply to Nanny857]

Thank you, at the moment she is still drinking and gives me a squeeze

of her right hand ,

[AJK2001]

Thinking of you, it's not easy but you know she is being well looked after and she feels your love. xxx

[racinlady]

So sorry. . . . .

Hugs,

Pat

[raincitygirl]

Such a hard hard time Peter..... Hugs to you for strength and peace.

Anne G

[Birdman34265 in reply to raincitygirl]

Thank you