It's been quite a while since I posted this. I hope it's helpful to repeat...
The Health Unlocked search engine is fairly poor.
To find posts on a given topic it is far more effective to use Google search. I'm sorry to say they have the best search engine out there.
In a Google search bar on your browser type the topic you want and place the words 'Health Unlocked' and 'PSP' at the end. It will bring up the correct old posts.
Waiving and smiling to you.
Kevin
Written by
Kevin_1
To view profiles and participate in discussions please or .
We keep going... (oops, my moggie has just jumped onto the desk and told me to go to bed... She is early, an argument will likely occur. ( deleting moggie keyboard walking).
It's not easy... Liz has had enough... We hold hands and sit it out. Tearfull, quite a bit.
So so. I keep having falls which terrify me. Never knew I could be so weak.I go to the day unit at the local hospice but to be honest seeing what’s to come fills me with dreadI’m on antidepressants but still very tearful when people are nice to me!
Both Kevin and myself are having counselling , but still finding it so hard to accept. I can understand exactly how Liz feels and I’m not near where she is. The worst part is that people not in the know keep saying”when you’re better”and I have to reiterate that it’s only going to get worse. I have to compare it to MND to help them understand.Jaynexx
I know this will sound silly, because you have little choice, but your being incredibly brave. Why so? Because you are confronting it every morning and you are going to the Centre and counselling and most likely more.
With Liz it got easier for her with time. She described seeing the world as if through thick glass and that it was clear, but a little distant.
I wish you both the best of it and that you have things to do which are a pleasure for you.
Thank you,Kevin. The way I get through now is to think of what I used to do as my old life (incarnation)and it’s becoming less memorable. I have donated my guitar and all the parafanalia to the hospice to help raise funds for the new building,well I shan’t need it anymore and it only serves to remind me of days gone past. I am stuck with the cards that have been dealt,just make the most of days when I feel ok.
As another tip....if you just Google CBD the first 100+ results will be about Cannabis Based Oils and Oinments. You need to use "corticobasal degeneration". This a peevee of mine but that's another topic
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.