jhon: hi all hope you are all well not been... - PSP Association

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jhon

laila123 profile image
10 Replies

hi all hope you are all well not been on for a while as still trying to come to terms loosing jhon still fighting the good fight

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laila123 profile image
laila123
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10 Replies
Heady profile image
Heady

Hi Laila, keeping fighting, that's all you can do!

Sending you lots of love

Heady

NannaB profile image
NannaB

As Heady said, keep fighting but keep living and loving as well.

X

Yvonneandgeorge profile image
Yvonneandgeorge in reply toNannaB

Hi Laila, all you can do is remember the good times, and he is in a better place, this PSP is so horrible. Sending you a big hug xxxxxx

easterncedar profile image
easterncedar

Hi, Laila. Standing at the edge of the precipice myself, still enjoying some good times, but with increasing difficulty, reading the posts from folks further along who are struggling to care for their loved ones who are helpless and suffering, or out of control in some awful way, or who are in care and unresponsive, and I am sometimes terrified of what the future holds, questioning my ability to withstand it...than I think of you and Strelley and Jimbo and Nomansland and Nannygoon and so many others who have lost their loved ones at last and are grieving. Ach, it's life. It's hard and full of sorrow, but if we are lucky we find some love along the way. I hope you are comforted by your memories and knowledge that you had love, and did your best to cherish it. I'm going home now to cherish my sweetheart a bit harder. Hang on, dear Laila. Love and peace, Ec.

nomansland profile image
nomansland

Laila ,Madeline left her misery at Easter,as there was no cure for PSP there seems to be very little cure for the terrible void it leaves behind,love Rollie

easterncedar profile image
easterncedar in reply tonomansland

Good to know you still check in with us, Rollie. I'm sure you are suffering, but I do hope you are finding some sparks of joy now and then. You have family near, I think?

Summer is shutting up shop here in Maine. Will it linger longer with you, or go more quickly? I once swam in the Bay of Fundy at the end of September and thought it was pretty warm. The ocean is never warm off Maine!

Love and peace, Easterncedar

Heady profile image
Heady in reply tonomansland

Dear Rollie, no you are right, there is no cure or anything that will fill the void that Madeline has left in your life. But if you wake up in the morning, then you have to get up and on with life, somehow! You will find a way to live, it get enjoyment out of life again

Heady profile image
Heady in reply tonomansland

Sorry, I went to correct an error and the damned thing went off to the ether!!! Rollie, life will improve, it's still very early days, as they say, one day at a time!!! I am sure you are doing all the correct things, going out, joining different groups anything that gets you out and about. One day, you will find, it's suddenly not such an effort, until then, you know where we are, when you want to talk!!!

Lots of love

Heady

peterjones profile image
peterjones

hi laila 123 keep your chin up mate you are not alone mate you have the whole site with you take care peter jones queensland Australia psp sufferer

laila123 profile image
laila123 in reply topeterjones

still fighting the cause but feel like they are not interested

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