PSP Association
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CHC FUNDING - WILL I GET IT?

I AM WONDERING WHETHER I WILL GET THE CHC FUNDING 1ST TIEM AROUND -I HAVEBEEN ASSESSED AT HOM E AND AM AWAITIGN THE REPLY FM THE COMMITTEE CONSIDERING MY CLAIMIT WOUDL BE GREAT IF I COUDL GET IT AS IT WOULD MEAN MY CARERS COULD COME IN MORE AND DO MORE FOR ME THAN A PRESENT

I SHALLL HAVE OT GET IN TOUC H WITH THE SOCI`AL WORKER AND FIDN OTU - SHE HAS BEEN OFF SICK FOR A WHIEL AND HA SNOT BEEN IN TOUCH IWHT ME

SO ANYCOMMENTS WOUDL BE HELPFUL

LOL JILL

:-)

16 Replies
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Hi Jill. Do you know when the committee met? I heard we had got it by phone the day after the panel met but we are in Kent. I'd give Social Services a ring if I were you. I do hope you are successful, it does make so much difference to us.

Best wishes Nanna B

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THANKS 4 YOUR HELP NANNA B AND ALL THE OTHERS WHO HAVE REPLIED

I HA VE GOT THE CHC BUT TH E PANEL JUST HAVE 2 MEET TOMORROW TO CONFIRM IT

I T IS A RUBNER STAMPIGN EXERCISE I AM TOLD1

I DO HOPE SO AS IT MEANS WHEN I GO OTU I CAN HAVE A CARE R WIHT ME (AT THE MOMENT MY PARTNER HAS 2 TAKE ME ANYWHERE AND I DO NEE D

SOMEONE 2 STAY WIHT ME OS THAT I DO NTO FALL OVER (IT HAPPPENED 5 TIMES IN TAI CHI LAST WEEK AND I SHALL USE A WHEELCHAIR TO GETME THERE NOW)

SO THANKS FOR ALL UR SUPPORT AND I CAN LOOOK FD 2 GETTIGN OUT MORE WIHT FEWER FALLS

THE MAIN PROBLEM NOW IS AROUND HTE HOUSE 0 - I HAVE A V ERY EXPENSIVE U STEP WALKER WHICH I USE OCCASIONALLY (NOT ENOUGH) BUT I DO TEND TO GO OVE RWITH IT AS WELL1

SO THE MAIN ANSWER SEEMS OT BE: I NEED TO BE WATCHED AT ALL TIMES

HWENI M WANDERING AROUND

A NONITOR WOULD BE USEFUL I HTINKG BUT NOT THE ANSWER TO ALL MY FALLIGN PROBLEMS

I AM DEF GOING TO GEWT A FEMALE URINAL FOR USE IN THE WINTE RIN BED ASI AM GOING 2 THE BATHROOOM 4 TIMES A NIGHT AT THE MOMENTAND I HAV EPROBLEMS GETTIGN THERE ON TIEMT TOO

SO I SHALL NO T DWELL ON THE PROBELMS BUT NEED TO DISCUSS WIHT MY PARTNER WHAT EXTRA HELP W OULD BE USEFUL FOR ME

A TGHE MOMENT I HA VE 21 HRS OF CARE IN A TYPICAL WEEK BTU NEED MORE NOW

I SHALL HAV E TO TOPUPT HE PAYMENTS WHICH TH E NHS APYEM I REALISE THA T OT KEEP ON HOME INSTEA D WHICH HAS EBEN GREAT FOR ME BUTI MAY AHV EOT HAV E A 3RD CARER TO FILL IN THE GAPS

NUFF SAID 4 NOW

R U OFF OT CHURCH NANNAB?

LOLJILL

:-)

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Didn't get there this morning Jill. I find it a job to get there by 10am but we are listening to Premier Christian radio at the moment and going for a wheelchair walk in a minute. I have a group from our church coming here on Tuesday evening for prayer, communion and a laugh as well.

Have a good Sunday.

Nanna B

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Best of luck - it seems to be a bit of a lottery - if you don't get it there is no justice in this world. Perhaps we should ask Mr Duncan Smith to come and be a carer for a week or so - bet he would lose the rest of his hair !

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THANKS NANNA B AND GEORGEPA FOR YOUR REPLIES

YES I WILL HAV E TO CONTACT SOCIAL SERVICE SADN SEEE IF THE CTTTE EHAS HEARD MY CAS EYET - THEY MEET EVYRY MONDAY I KNOW THA T BU TI AM ONLH 1 OF MANY I GUESS

LOL JILL

:-(

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Hi Jill, hopefully you will get the funding with no problems. My mum had 11hrs funding then unfortunately had a bad fall and was hospitalised (she was living alone) Mums CHC funding had to be increased to release her so sadly it took the fall to increase the help. My sister and I also follow up on all appointments and angles possible as you have to nag at times to get things done. They have also very recently brought out a new, supposedly more objective means of determining funding levels but as its new if you are unhappy with your assessment then ask for it to be re-checked. It's not very nice to play on your condition or things you are struggling with but sadly you have to. Mum has now been allocated 34hrs a week but we are still waiting for her support plan to be finalised. If you want any more tips or advice on this Jill I'm more than happy to help as I've been handling all the paperwork for my mum. I've also referred mum to continence clinics (suprisingly not standard procedure for psp sufferers it seems) for advice on frequent urination and constipation etc and mum has been having acupuncture for pain relief.

Good luck Jill :)

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Oh Jill, I do hope you get it!

Best of luck,

Mo

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Good luck I do hope you manage to get it . It would a lot of stress away for you . We haven't applied as yet . It will be interesting to hear how you get on . Are you able to walk at all or do anything for yourself . Awe live in s Wales and was told ypur have be needy in certain things . Such as swallow choking ! understanding ! etc .

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HI I AM A RFEAL DANGE R TO MYSELF AND OTHE RS IN THAT I AM STUBBORN AND INSIST ON TRYIGH TO DO THIGNS WHEN I REALLY CANNOT DO THEM

I NEED OT REALSIE THAT I AM A REAL DANGER TO OTHERS IF I GE TTHE FUNDIGN IT WILL WMAKE LIF EMUCH SIMPLER I HOPE

LOL JILL

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I do hope so . It will encourage me to try My husband is house and chair bound I feed hi and wipe his eyes and nose they ep are the finer things I have to do for him lol . I do have carers night and morning but I mostly do everything myself in some ways shoot myself in the foot , But I want to continue doing so .mEhen I asked the district nurse m Parkinsons nurse and the social service lady they told me he wouldn't be eligible .!! on top of that its not going to improve is it .

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hi cabbage cottage

i do not think you have to take NO for an answer i, among with the community matron have appleoid for the CHC so am hopeful btu not too much so..we shall see

lol JIll

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You are so right Jill . The very best of luck with it . It would make such a difference and take some of the pressure off .

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hello jill

i am praying for you so that you will get the funding that you obviously need - how is it tyou have got so bad 0- it onlty seems like yeasterday that we were talking to one another on skype ##

love from shaaron

1 like
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HI SHASHA

I HAVE GOT HTE CHC FUNDING MAINLY BECAUSE I AM SUCH A DANGER TO MYSLEF AND OTHER S WHEN I WALK AND FALL OVER BRINGING THME DOWN WIHT EM.

\MY SPEECH HAS GONE V QUIET AND A LOT MORE GARBLED SO TI IS V DIFFIUCLT TO MAEK MYSELF UNDESTOOD AND MY INCONTINENCE IS NOT PLEASANT EITHER

OTHER THAN THESE PROBLEMS WHICH HAV EGOT MCUH WORSE IN T HE LAST 2/HALF YEARS (since we last skyped!) I AN GOOD AND INTEND OT REMIAN SO FOR A WHILE YET

R U / DID U TAKE PART IN THE GLOBAL SCREAM WHICH WE HAD TODAY?

and ANOTHER ONLINE ;PARTY PLANNED FOR SAT 6 DEC AT 3PM =- PLZ TRY AND COME 2 THIS ON E

LOL JILL

:-)

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Hey Jill, that's brilliant news, that you have got CHC funding. Hope it helps and keeps you upright for a bit longer!

Lots of live

Heady

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thanks heady

yes i twill make a difference to me and keep me euprigth at tai chi and the choir where i now use a wheelchair

lol jill

:-)

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