Does anyone have problems with there loved ones if there is anything different happening. Oh we did have a bad day yesterday all anxious and heavy breathing fidgety and quite frankly driving me up the wall. What was it all about you ask...... Matron changed her day.
then to top the lot 5 times I had to get up and sort him out because he was so restless and he got his knickers in a twist all about a day. Any ideas as to why and does aanyone have a solution to this kind of problem.
Janex
I AM NOT SURE JZYGIRL WHAT YOU MEAN BY A CHANGE IN THE DAY!
IT SI PROBABLY THE PSP TALKING (IF IT COULD) - IA M V RESTLESS SINCE DXD WITH HTIS PSP AND CANNOT SIT STILL FOR MORE THAN A COUPLE FO MINUTES B4 I WANDER OFF TO DO SOMETHING (I KNOW NOT WHAT)
IT SI V DISCOCERTING FOR MY PARTNER WHEN HE WANTS TO SIT FOR A CHAT B4 A MEAL OR DURIGN (I CANNOT EAT AND TALK AT THE SAME TIME AND RUSH MY FOOD ANYWAY)
WHAT WAS YORU PARTNER WORRIED ABOUT THE DAY FOR ??
SORRY I CANNOT HELP
LOL JILL
:_)
Hi Jill its almost like he is frightened but of what he can't say. It only happens if there is a change in routine ie someone new coming to see him or if the come on a different day to what was agreed in the 1st place. He fidgets in the chair almost like rocking back and foward and then he starts heavy breathing it's like obscene phone call.
hard to explaine but I'm sure its getting worse. Janexx
I have exactly the same problem with my wife- she hates any change in routine or anything different happening . We are having to make adaptions to the house to deal with the PSP but they cause her huge anxiety and constant questioning as to what is going on . Even if we go out somewhere she always wants to go to the same place . I don't think there is a solution - some days are worse than others. All I can do is be as comforting as possible and then retire to the kitchen and reach for a large glass of wine at the end of the day -oh and tune into Nannabe as she usually has some words of wisdom coupled with an anecdote which makes a bad day not quite so bad .
I think that if one has no sense of what is happening any change is like an earthquake, or even better like Alice in wonderland plummeting down the rabbit hole to a new crazy out of control world. For my husband the best way to calm him has been a long car ride with no destination. Some thing about the motion seems soothing. When he asks where we are going I might say "to the bank" or "an errand", or "market" He loves ice cream so I say "Let's get ice cream" and that works. I also have a wheelchair in the house so I give him a ride round and round and round and round the house and that seems to work. Sometimes I sing old songs (I don't have a particularly good voice). To control MYSELF as I am seriously losing it, I call a friend and just talk and talk on the phone and completely ignore him, or at the very worst when I just can't take another min. of it, I lock all the outside doors and safety proof the house and go to my room and lock the door and leave him alone for some few moments until I can face it again.
Jill
Costa Rica
Hi Jane -in an uncertain, frightening world, routine must be everything.
I can only offer sympathy, not solutions, as Tony didn't have too many such episodes.
And when you are tired, concentrating on reading or music can be difficult for you.
All I can suggest is time to yourself occasionally - Jill in Costa Rica seems to have found her own way!
Thinking of you
Mo
My husband Roy is very much the same...very, very anxious and keeps asking the same question about whatever,over and over, he seems to dwell on the subject of the visit we are about to make or the person we are going to see he can't concentrate on anything else until we are there or the person has arrived! Poor love.
D
Did he have anxiety pre-diognoses. Brian has always sufferd with anxiety but it seems to be worse now. I use Bach rescue remedy as and when he needs it .not sure if its a placebo effect or whether 7t does work but we decided that it was best not to go back down the route of antidepressants as that can effect cordination. Enough problems on that front with the psp/cbd. Janexx
Roy had never had anxiety issues before CBD and one of the things he was treated for in the beginning of signs of the disease, was depression and high anxiety by a Neuropsyciatrist who he still sees every 6months.he also has a neuropsyciatry nurse come every couple of weeks to keep on top of it all. She has been a life-line at times and has been with us since the beginning.so nice to have someone to talk things over with who can report back. Dx
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