hi guys I hope i`m not speaking to soon ,m... - PSP Association

PSP Association

9,626 members11,552 posts

hi guys I hope i`m not speaking to soon ,my husband is in the last stages of psp was diagnosed in 2010. he is high care,and one of the many

oops54 profile image
13 Replies

symptoms he has is he groans all most every day and night,I was reading about the benefit of onions and the flu , so I put an onion cut at both ends in his room ,over night its been three nights now ,and he hasn't groaned once I hope this is going to stay this way, but i guess it won`t. regards christine .

Written by
oops54 profile image
oops54
To view profiles and participate in discussions please or .
Read more about...
13 Replies
cabbagecottage profile image
cabbagecottage

I must try that , On the occasions that I have had flu I moan a lot . my father also used to do so .

jillannf6 profile image
jillannf6

Hi I am not at rthe moaning stage yet but I hum all the time and it is usually ok as it is something from the choir which I stiolł go t o

lol Jill

:-)

oops54 profile image
oops54 in reply tojillannf6

HA HA that would sound good .just the thing to keep the spirits up . christine

goldcap profile image
goldcap in reply tojillannf6

I love your attitude Jill. God Bless you!

Baddie profile image
Baddie

Hi glad the onions are working never heared of this.

we found when our dad who has now passed way

When he groaned it was because he was in pain or uncomfortable

Hope you getting all the best care you can with this terrible illness

oops54 profile image
oops54 in reply toBaddie

thanks Baddie. maurice is not in any pain he gives the thunbs up when we ask questions so no pain , but his groaning all the time was A PAIN! cheers christine.

carolinesimmons profile image
carolinesimmons

Wow! If it works, why not? Occasionally my husband groans and when I ask him if something is hurting he will say "I'm just making noise." He can't participate in conversations and rarely talks, so I guess making some kind of noise is in its way entertaining or cutting the boredom for him. It never lasts too long though.

Caroline

oops54 profile image
oops54 in reply tocarolinesimmons

hi caroline yes somtimes when he would groan i would say can you please stop ,and he would say i can`t help it ,so i think it may be congestion on his chest , as he can`t cough he has no strengh to do so .thanks ,cheerio christine

jimandsharynp profile image
jimandsharynp

Interesting thought, onions. Whatever works is cool in PSP. My wife doesn't groan but often when I'm talking she will make a humming sound. Often when she doesn't like what I'm saying. LOL

Jimbo

oops54 profile image
oops54 in reply tojimandsharynp

Thats funny ! jimbo I think it was coming from his chest as he can`t cough now he has been and still is taking an antibiotic every day to help with chest infection , about three years before he was diagnosed with PSP he had pneumonia, this may be why ,but im not sure . but i just hope it lasts . by for now christine

terrirt profile image
terrirt

My husband moans all day most days and before he falls asleep. After he's asleep, he's fine. He says he can't help it. He tells me to go lay on the couch til he falls asleep but usually I don't. I've gotten use to it.

oops54 profile image
oops54 in reply toterrirt

hi territ its been a week now or a bit longer ,but no sure if he is still not groaning as he is is in respite care i have been away for two days , iv`e just came back now from visiting him and i didn`t hear any groaning . he will have another week in care and come back home .so i hope it does not return .cheers christine.

terrirt profile image
terrirt in reply tooops54

Yes, hopefully it won't return. I'll be anxious to know.

Not what you're looking for?

You may also like...

My husband breathed his last in sleep on 21st august He was diagnosed PSP in 2010 He suffered a lot he was very alert mentally till the end

he suffered more bcos he was unable to swallow'see 'walk etc eyes were centre fixed for nearly 2...
LALITHA profile image

Hi guys my husband was diagnosed with psp three and a half years ago, about four or five years earlier he was showing symptoms. his legs

weak,he no swing in his arms his hand writing became very small,he took everything seriously.I...
oops54 profile image

Hi my husband was diagnosed in August. 2013 with psp he was in hospital. Gravely ill with chest and urine infection. But it seemed to affect

His whole body his kidneys sodium levels he is also on drips as he is peeing a lot he has now clear...
Kris1983 profile image

My husband's PSP is in the last stages. Eyes, speech, wheelchair bound,swallowing etc. weighs less than 100 lbs. He was put in a nursing

home when I had a ruptured appendix. He has been there for 3 mo. & I was thinking about bringing...
annielee1 profile image

My husband has PSP. I called in Hospice in early Dec. They have been very helpful except my husband does not complain of pain but I feel

he has pain but won't tell me. They prescribed a cherry flavor liquid of acetaminophen He...
lancjack profile image