SebCoe - Francis Crick Institute response - PSP Association

PSP Association

9,232 members11,334 posts

SebCoe - Francis Crick Institute response

wifemo profile image
3 Replies

Have today received a reply about sending everyone's comments:

" Dear Mo

" I work closely with Seb Coe and am also a trustee of his Foundation. I just wanted to thank you for your kind words and for taking the time to pass on other people’s responses to the news of Seb’s Foundation. Seb was very touched and is determined to make a difference in finding a cure and helping sufferers of PSP.

" It is early days for us but we do hope to raise some significant funds in due course. Thank you for writing and do stay in touch.

Susie Black "

Looking forward to hearing more - the latest PSP Association publication/journal "PSP Matters" did carry an article but it didn't say more than we already knew.

Written by
wifemo profile image
wifemo
To view profiles and participate in discussions please or .
3 Replies
dorothy-thompson profile image
dorothy-thompson

Hi Wifemo

Sorry but this must have been another blog that I did not see, this site is becoming a nuisance, I often see blogs months after they were posted.

Anyway, I know about Seb Coe, I think I have heard of Frances Crick, didn't he decipher our DNA? But what responses from us are we talking about?

Regards

Dorothy Thompson

wifemo profile image
wifemo in reply to dorothy-thompson

Hello Dorothy - The original post about a month ago was headed " Lord (Sebastian) Coe building new research centre "

The link was :

telegraph.co.uk/health/heal...

It had been forwarded to members of the Norfolk PSPA Support Group by the brother of one of the Group. It's about a new Centre being built near St Pancras, London.

The £650 million project is a partnership between Cancer Research UK, the Wellcome Trust, the Medical Research Council, University College London, King’s College and Imperial College. Around 1,500 scientists will be based in a “centre of excellence”, with computer scientists, mathematicians and engineers working alongside biologists, chemists and physicists.

[That was a shortened version for someone who was unable to open the link.]

Various members of this site responded with comments, one (Gayly) asked:

"Could our replies be passed on to him to show how much we all appreciate what he is doing?"

which I did, and the reply has just come back.

Best wishes

Mo

ultramodern profile image
ultramodern

Thanks,Mo, for doing the needfull in sending all our supporting postings to Lord Seb Coe.

When one starts into an immense project like the Francis Crick Inst; you need all the moral support you can get.

So well done ...you see how happy he was to receive them?

best,brian.

You may also like...

Response to sexual urges

with this awful disease. Now PSP has took hold , mentally he seems alot more chilled than he has...

What health care teams are responsible for PSP sufferers?

For those of you in the UK. Does anyone know where PSP sits with health care teams? Is it under the...

Carers dilemma responses

Thanks guys and gals for all your comprehensive responses , they really do help. There are so many...

Wow. What a response to Grey January Day

scared like he knew she was? I hope not as he does not seem to realise the significance of what is...

Liz has passed on - Thank you for the wonderful responses

Hello Folk Thank you for all of the wonderful responses on the other thread. I was moved by the...