Have today received a reply about sending everyone's comments:
" Dear Mo
" I work closely with Seb Coe and am also a trustee of his Foundation. I just wanted to thank you for your kind words and for taking the time to pass on other people’s responses to the news of Seb’s Foundation. Seb was very touched and is determined to make a difference in finding a cure and helping sufferers of PSP.
" It is early days for us but we do hope to raise some significant funds in due course. Thank you for writing and do stay in touch.
Susie Black "
Looking forward to hearing more - the latest PSP Association publication/journal "PSP Matters" did carry an article but it didn't say more than we already knew.
Written by
wifemo
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It had been forwarded to members of the Norfolk PSPA Support Group by the brother of one of the Group. It's about a new Centre being built near St Pancras, London.
The £650 million project is a partnership between Cancer Research UK, the Wellcome Trust, the Medical Research Council, University College London, King’s College and Imperial College. Around 1,500 scientists will be based in a “centre of excellence”, with computer scientists, mathematicians and engineers working alongside biologists, chemists and physicists.
[That was a shortened version for someone who was unable to open the link.]
Various members of this site responded with comments, one (Gayly) asked:
"Could our replies be passed on to him to show how much we all appreciate what he is doing?"
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