Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for July 2013

Sight & PSP

Standard optometrist tests six months ago have shown my husband can still read the letters off a chart. However, I have concerns that my husband is signing...

Standard optometrist tests six months ago have shown my husband can still read t...

SharonAB

•11 years ago

4 Replies

Me And Iris.

Iris is what I named my C-PAP machine. I decided to name it since we would be spending so much time together. Trying to remain positive, I chose the name...

Iris is what I named my C-PAP machine. I decided to name it since we would be sp...

JudyJ

•11 years ago

11 Replies

Could my father's loss of his sense of smell (and therefore taste) have been connected with onset of PSP?

Has anyone else lost their sense of smell and taste in the early stages? Just wondering - but it could be totally unrelated as his skin condition, Bullous...

Has anyone else lost their sense of smell and taste in the early stages? Just wo...

MoragR

•11 years ago

10 Replies

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Speed of deteration

Hi My father was diagnosed recently after a misdiagnosis, however we cannot get any straight answers. He has gone down hill very quickly, lost his speech,...

Hi My father was diagnosed recently after a misdiagnosis, however we cannot get ...

Annabella1

•11 years ago

12 Replies

Has anyone experienced an altered state of consciousness in people with psp?

My husband recently has had a couple of episodes where he appears for a few seconds "out of it" and then returns to his normal self. He doesn't loose...

My husband recently has had a couple of episodes where he appears for a few seco...

Peter3

•11 years ago

12 Replies

Conveen coming of and causing sore skin

I have been wearing conveens for a number of years now but this year the rot set in, first the glue they use started to make my penis very sore so sore in fact...

I have been wearing conveens for a number of years now but this year the rot set...

pheonix62

•11 years ago

19 Replies

Coming Soon - New HealthUnlocked

Hi Everyone We know how important HealthUnlocked is to the PSP on line community so we just wanted to let you all know that HealthUnlocked will be launching...

Hi Everyone We know how important HealthUnlocked is to the PSP on line commun...

Hidden

•11 years ago

8 Replies

Prism Glasses

My dear Ronnie lost his fight against this terrible disease on 12 June and I am still feeling very raw right now. Family and friends have been wonderful but...

My dear Ronnie lost his fight against this terrible disease on 12 June and I am ...

Shelagh

•11 years ago

11 Replies

Putting my foot in it seems to be the new normal

I love my husband dearly. I feel it. I know it. I believe it. Then why do I take out my irritability on him? The other day, he was directing me on the...

I love my husband dearly. I feel it. I know it. I believe it. Then why do I ...

CarlaL48

•11 years ago

32 Replies

Nighttime toileting for PSP patient.

My wife has PSP and constantly needs the toilet. No problem managing daytime but getting up two - three times every night is becoming a real struggle. If...

My wife has PSP and constantly needs the toilet. No problem managing daytime but...

Sayer

•11 years ago

23 Replies

Update on week of trauma

Well, things don't stay still. They have a way of moving on whether you are ready for them or not. Both fathers have died (my children's and my son-in-law's)...

Well, things don't stay still. They have a way of moving on whether you are read...

carolinesimmons

•11 years ago

3 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for July 2013

Sight & PSP

Me And Iris.

Could my father's loss of his sense of smell (and therefore taste) have been connected with onset of PSP?

Speed of deteration

Has anyone experienced an altered state of consciousness in people with psp?

Conveen coming of and causing sore skin

Coming Soon - New HealthUnlocked

Prism Glasses

Putting my foot in it seems to be the new normal

Nighttime toileting for PSP patient.

Update on week of trauma

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive