Conveen coming of and causing sore skin

[pheonix62]

I have been wearing conveens for a number of years now but this year the rot set in, first the glue they use started to make my penis very sore so sore in fact to the point of bleeding and on those occasions I have to live on a wing and a prayer and go au natural for 2-3 nights with the consequences of waking up in the morning in a very wet bed.

Then there is the other problem of my sheath coming of it just seems that after about two hours of putting my sheath on my JT shrinks and any passage of urine pushes the sheath off altogether. I have tried not wearing one, cutting down on evening fluids and got to the point of setting my alarm clock at varying times during the night so I could wake up and visit the bathroom but I never here my alarm now I am at my wits end anyone out there had similar problems and overcome them please let me know how you did it.

[dorothy-thompson]

Dear Pheonix62

I have more or less solved that problem with my husband by using something called a 'Sheath Liner' which can be supplied by Coloplast with the Conveens It is a small strip of sticky stuff which is wrapped around the penis, the sheath is then put on in the same way but over the strip - it comes with instructions. He does have the occasional mishaps but on the whole it works very well. Good luck.

Dorothy-thompson

[cabbagecottage in reply to dorothy-thompson]

Have you tried the top strips on there own or maybe u could even try using both

[kingrose in reply to dorothy-thompson]

I was recommended the sheath liner by one of my many good hearted carers, I had very similar problems to what 'pheonix62' mentioned above.

Certainly not good advice to some one like myself having to use the conveen every day over many years. The skin of the penis inevitably becomes very sore and fragile after such chronic use. Due to my circumstances using the sheath liner was a complete disaster and a very bad mistake. A wound larger than previous sores developed at the base of my penis, result was that it took a long time to heal with bed rest.

Excuse me for sounding like an advertisement, prior to using the Afex external catheter during the healing of the wound caused by the sheath liner, I use something called the Beambridge funnel urine bottle by the Beambridge medical company ( look it up online ). This product has the advantage of an extension tube from the bottle leading to a urine bag making it easier and convenient for prolonged bed rest.

[pheonix62]

Many thanks Dorothy for that little gem of information I shall be in touch with my Health Care Provider tomorrow as my monthly supplies are due. I do have recollections when using the Rochdale system they provided these strip as part of the kit. Once again thank you.

[pheonix62]

Charter Health care the supplier of these coloplast conveens were very helpful when I rang them this morning, I ws able to talk to someone who was knowledgeable with their products and consequently they are sending me a couple of samples of smaller conveens, conveen liners and wipes and a size guide if this fails I would have to go back to my health care provider for re-assessment.

[cabbagecottage in reply to pheonix62]

There is another gadget for want of a better word, which you place ver the penis and is then strapped around you . My husband has so far not used , we haven't been shown properly how to as yet . It might suit you as well because it has something of a pump action and will hold on but not restrict the flow which I find sometimes happens to my husband , because of the start stop freezing of Parkinson's .

Hope you can follow that . We have our supplies from . GREAT BEAR COMPANY

[pheonix62 in reply to cabbagecottage]

Thanks for the info my Urology nurse calls this the "AFEC system" (adhesive free external collection. The plastic bottle is held in place with a pair of adapted boxer shorts to which a 500 ml collection pouch is attached) sadly my Urology nurse would not go along with this even though the system is now available on the NHS. It seems that what is available and where you live (the post code lottery) can either work for you or against you. I am not going onto pads at this stage in my life so I am hoping Charter Health Care comes up with something otherwise it seems I will have to start and pay for my own system at first and battle it out with my primary care provider.

[cabbagecottage]

We live in the UK . S Swales . I have found the leaflet that came with the appliance . It is the JADE MALE URINAL . . IT IS made of rubber and held on with straps then attached to a bag .It stop any air locks .do you know what I say !!!!!! IT LOOKS RATHER LIKE A SEX TOY!!!!!!

Golly what subjects we talk about .. But we are all here to help one another aren't we

[pheonix62 in reply to cabbagecottage]

LOL yes I can gather from your description that some of these appliances take on the form of sex toys which just goes to prove what my Urology nurse said about conveens "they are made by women to render men useless". Thanks for giving me the name of your product I will Google it and see if it is a better method than the conveen. The beauty of the afex system is that no straps are required if you are a low volume user and active, if you are sedentary you are better of with the large volume leg bag which of course requires straps to be used.

Wow! I just realized that the discussion turned mildly to sex as it is wont to do, but as you say we are here to help each other out and if we can raise a few giggles on the way good on you life is too short to be entirely serious. Carpe Diem is my motto.

[Gresley in reply to cabbagecottage]

Jade sent me a continence nurse and she fitted me up with one their bodyworn urinals. And yes they are a bit of a sex toy. When going for a walk the rubbing gives me an erection and I have come close to ejaculating on occasions.

[cabbagecottage]

Dorothy Thompson mentioned sheath liners we used those but I have found the liner strips that go on top best .

Fortunately my husband isn't incontinent but we have been grateful to use a convene and bag which is a big help at night , it enable us both to get some sleep . My husband is quite immobile . he use it during the day also .

do you use the Apeel adhesive remover it helps if you spray it on the sheath when removing it . I sometimes just put the conveen on and use a bottle when necessary it's less restricting for him but place a bag on if I go out . So best of both worlds.

His skin is rather sensitive and I do worry that using the rubber straps may cause him other problems so don't go down that road .

[pheonix62 in reply to cabbagecottage]

I also suffer from psoriasis and my skin can get very sore, often I find it is the after effects off the conveens adhesive that is causing a reaction. and I also get penile refraction very often about 2-3 hours after putting it on for the night so of it comes and because I sleep so deeply I wake up in a very wet bed. I tried doing as the Urology nurse sugested and that was to remove the old conveen while in the shower but believe me this has not made one scrap of difference. So you can guess I am at my wits end and I just feel as though I am back to square one And as for rubber straps as I have peripheral neuropathy these are ruled out as they restrict what flow of blood into my limbs that I have. Many thanks for your help and ideas and sharing your experiences via your care for your husband I am ever so grateful.

[cabbagecottage]

It's amazing how similar you both are . My husband also has had psoriasis most of his life it was in his family , I am wondering how many others might have had Parkinson's and not know .arkinsons seems to affect the skin as well . I cleanse my husband face and head at least twice a day with a gentle baby wash and make sure hie is dry any eruptions I have diScovered the best thing for it is good old Sudacreme . He also had Bullous Penthagoid which flared up for about 5 years try Googling that one its not nice . So I take real care of his skin . Sometimes my husband retracts as I put t,he convene Bon I have found the over the top liners hold OTretty good . Do u find it collapses which then affects the flow . His does .

[cabbagecottage]

It's amazing how similar you both are . My husband also has had psoriasis most of his life it was in his family , I am wondering how many others might have had Parkinson's and not know .arkinsons seems to affect the skin as well . I cleanse my husband face and head at least twice a day with a gentle baby wash and make sure hie is dry any eruptions I have diScovered the best thing for it is good old Sudacreme . He also had Bullous Penthagoid which flared up for about 5 years try Googling that one its not nice . So I take real care of his skin . Sometimes my husband retracts as I put t,he convene Bon I have found the over the top liners hold OTretty good . Do u find it collapses which then affects the flow . His does . Try not showering as often just top and tail . This made a big difference . not getting too wet all the time good luck

[pheonix62 in reply to cabbagecottage]

Yes we are very much alike your husband and I,psoriasis as well as Parkinson's runs in my family as well on the male side it is more dominant, my father being the first born in his family missed it but went on to develop MS and diabetes it was my uncle the second born that had Parkinson's and from what I remember there was some concern about me being the second born male child but fortunately it missed me and got my niece (sorry I should say unfortunately) instead, my niece was the first born of a second born child if you can follow that, fair to say on my fathers side it skipped a generation. I use Zero cream as an emollient for showering in (note do not wash your face in this stuff) then after rinsing I use E45 cream, for my scalp I use Capasal shampoo and if you get over the smell this makes it is a very good coal tar base shampoo. Of course the good old Sudocreme comes into its own with me when I am sore in delicate places etc I just trowel it on thick. Yes I find that the retraction is part and parcel of urine flow, I then try and relax to get it back to normal before I can have a good "P" but as for showering I hate strip washing much quicker and easier to shower just as long as you use baby powder in the folds of the skin and in the groin area to absorb any wetness toweling does not get. Thank you very much I think I have learned a lot from you in the course of a day. Peter

[peterpan1980]

we have the same problem and would love advise on conveens please xx

[Thinker3]

When soreness or red raw skin occurs, I use plain old warm salt water. Use every day until skin clears - in my case 2-3 days. Salt kills yeast was my way of thinking.

[Tippyleaf]

Dear Phoenix62

Thank you so much for this post. I have just started using a conveen for my husband so I have picked up lots of handy hints from the replies to your post.

Hope you find something to help

Love Tippy

[969779936]

I know this is an old thread but no mentioned using a Mcguire urinal. These work very well for many of us. I use one at night and for travel. Made by two companies in the US -- Urocare and Duromed. An athletic supporter with a detachable sheath, drain tube, and either leg bag or bed bag. Very comfortable when applied correctly. Won't leak. I never get a rash. For travel have worn for up to 72 hours without removal.