Hi My father was diagnosed recently after a misdiagnosis, however we cannot get any straight answers. He has gone down hill very quickly, lost his speech, most of his swallow reflex and can barely more, cannot stand and has lost all facial expression. He has a very swollen hand so can no longer type on his ipad. I just wondered can this level of deteriation go on for many years. Its not nice to talk about, but we have to make decision about care etc and don’t know what kind of time frame we are looking at - obviously everyone’s different but a general idea would really help.