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PSP Association

9,266 members • 11,356 posts

All posts for July 2012

Brentwood Support Group

This is to remind you that the next Brentwood meeting will be on Saturday 28th July 2012, commencing at 2.30pm at The Marillac, Eagle Way, Warley, Brentwood,...

This is to remind you that the next Brentwood meeting will be on Saturday 28th J...

Partner•12 years ago

Passing.

Just want to share that my beloved Peter passed away on the 12th July. We will miss him very much.The illness had already taken so much of who he was....the...

Just want to share that my beloved Peter passed away on the 12th July. We will m...

•12 years ago

Can dad also have delusions?

My dad was diagnosed with PSP 3 years ago. He was reasonably well, but now seems to have suddenly detiorated in the last month. He is falling more, incredible...

My dad was diagnosed with PSP 3 years ago. He was reasonably well, but now seems...

•12 years ago

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dad new to PSP need advice?

Hi everyone my dad was diagnosed Jan 2012 i think he may have had the illness possibly 2/3 years prior to diagnosis. At present he displays the following...

Hi everyone my dad was diagnosed Jan 2012 i think he may have had the illness p...

•12 years ago

It sucks big monkey eggs

http://youtu.be/c-EiKPrAOHA

http://youtu.be/c-EiKPrAOHA

•12 years ago

Support groups

I attended the Camberley support group this Thursday with my father, for the second time and found it to be a wonderful resource for families and carers of...

I attended the Camberley support group this Thursday with my father, for the sec...

•12 years ago

What is a communications Board.

What is a communication board and where can I get one. I am in the U.S. (Texas) and no one has ever mention one to our family. My Dad is in the last stages...

What is a communication board and where can I get one. I am in the U.S. (Texas)...

•12 years ago

Battle

We seem to be waging a constant battle against sores of all kinds at the moment :-( as soon as we get one lot sorted another breaks out somewhere else. So...

We seem to be waging a constant battle against sores of all kinds at the moment ...

•12 years ago

Der neue

Ich wollte mich mal vorstellen weil ich ihr neu dabei bin um mehr über diese Krankheit PSP erfahren möchte .Ich selber bin 2008 erkrankt und PSP ist sehr...

Ich wollte mich mal vorstellen weil ich ihr neu dabei bin um mehr über diese Kra...

•12 years ago

Trackiotmoy & Peg/rig

Hi all, Does anyone in the early stages have a trackitomony or feeding peg/rig?? My father is not in the latest stages with his PSP but his food was...

Hi all, Does anyone in the early stages have a trackitomony or feeding peg/r...

•12 years ago

Cambridge support group, July 28th.

Tim Rittman and Cameron Wood will both be joining us. Tim has joined us before and is Research Fellow @ Cambridge University School of Clinical Medicine....

Tim Rittman and Cameron Wood will both be joining us. Tim has joined us before ...

•12 years ago

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We made it. The holiday my husband wanted.

We have just returned from a holiday in Malaysia and Singapore. My husband for awhile now has wanted to return to where he was born in Malaysia and where he...

We have just returned from a holiday in Malaysia and Singapore. My husband for a...

•12 years ago

Cambridgeshire Support Group

The Cambridgeshire Support Group Meeting will now be Saturday 28th July 2012 (and not 4th August as originally planned) from 2.30 pm to 5.00 pm at Trumpington...

The Cambridgeshire Support Group Meeting will now be Saturday 28th July 2012 (an...

Partner•12 years ago

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Northamptonshire Support Group

The Northamptonshire Support Group are holding a PSP Fundraising Evening on Friday, 27th July from 7.30pm at Tea-Zels Cafe, Harrold Country Park. Tickets...

The Northamptonshire Support Group are holding a PSP Fundraising Evening on Frid...

Partner•12 years ago

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Nottingham Support Group

The Nottingham Support Group meeting will take place on Monday 23rd July from 10.30am to 12.30pm at Mrs Shantha Nathan’s home, 32 Claremont Avenue, Bramcote,...

The Nottingham Support Group meeting will take place on Monday 23rd July from 10...

Partner•12 years ago

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Coventry Support Group

The next Coventry PSPA Support Group meeting will take place on Thursday 19th July 2012 from 13.00 to 15.00 at The Clinical Sciences Building, University...

The next Coventry PSPA Support Group meeting will take place on Thursday 19th Ju...

Partner•12 years ago

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Dorchester Support Group

The Dorchester Support Group meeting will take place on Tuesday 17th July 2012 from 11.00 hrs to 13.00 hrs at Joseph Weld House, Herrington Road, Dorchester...

The Dorchester Support Group meeting will take place on Tuesday 17th July 2012 f...

Partner•12 years ago

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Salford Support Group

The next Salford Support Group meeting will take place on Monday 16th July 2012 from 1pm to 3pm at Seminar Room 2, The Mayo Building, Salford Royal NHS...

The next Salford Support Group meeting will take place on Monday 16th July 2012 ...

Partner•12 years ago

Loughborough Support Group

We are pleased to inform you that the new Loughborough Support Group will take place on Monday 16th July 2012 from 2.00pm to 4.00pm at the home of Kathryn...

We are pleased to inform you that the new Loughborough Support Group will take p...

Partner•12 years ago

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Camberley Support Group

The Camberley Support Group meeting will take place on Thursday 12th July 2012 from 10.30am to 12.30pm at Corrina Lodge, 79 The Avenue, Camberley, Surrey, GU15...

The Camberley Support Group meeting will take place on Thursday 12th July 2012 f...

Partner•12 years ago

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Shrewsbury Support Group

The Shrewsbury Support Group meeting will take place on Thursday 12th July 2012 from 11.00 to 12.30 at The Hamar Centre, Royal Shrewsbury Hospital, Mytton Oak...

The Shrewsbury Support Group meeting will take place on Thursday 12th July 2012 ...

Partner•12 years ago

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Bristol Support Group

The Bristol Support Group meeting will take place on Tuesday 10th July 2012 from 13.30 hrs to 15.30 hrs at Sue Woolnough’s Home, ‘Elderns’ 19a Kings Weston...

The Bristol Support Group meeting will take place on Tuesday 10th July 2012 from...

Partner•12 years ago

Wimbledon Support Group

The next Wimbledon Support Group will be meeting on Saturday, 21st July, from 2.45pm to 4.15pm at Drake House, 44 St George’s Road, Wimbledon, SW19 4ED. (Map...

The next Wimbledon Support Group will be meeting on Saturday, 21st July, from 2....

Partner•12 years ago

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Annedares

Hi everybody, Well where to start. I've read this site for a year now and now I've managed to find the courage to write. My husband Isaac was diagnosed last...

Hi everybody, Well where to start. I've read this site for a year now and now I'...

•12 years ago

Death

My brother passed peacefully in his sleep. For those of you who have it or family members I hope this happens for you and who has it.

My brother passed peacefully in his sleep. For those of you who have it or famil...

•12 years ago

Does anyone with PSP get dizziness when looking down?

I get dizzy when l look down for any length of time. I get a pain in my eyes and in my neck. Also my eyes start to get blurry close up when I look down. If...

I get dizzy when l look down for any length of time. I get a pain in my eyes an...

•12 years ago

my wife may have to live with a catheter. Any expreience to share?

•12 years ago

anyone from Washington State?

•12 years ago

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