Does anyone in the early stages have a trackitomony or feeding peg/rig??
My father is not in the latest stages with his PSP but his food was going straight on to his lungs for nearly two years then he started aspirating and then taken to hospital suddenly and diagnosed with aspirational pneumonia.
He has been in hospital touch and go saying he wouldnt pull through and a member of staff in HDU/ICU wanted us to end his life but we gave dad the choice and he wanted to fight it. 9 months later he is still here he has a trackitomy and a feeding rig/peg and is coming home on his wishes with 24 hr careers which will be very intrusive to us but who cares its what he wants, he's still all there upstairs and can walk with aids.
I await your feedback.