We made it. The holiday my husband wanted.

[Peter2]

We have just returned from a holiday in Malaysia and Singapore. My husband for awhile now has wanted to return to where he was born in Malaysia and where he had worked in Singapore. We both knew that if we didn't do it now, it would probably be very difficult for him later. I have to admitted it was with trepidation I started to arrange the holiday.

We planned the dates for when our daughter could come with us as I felt with two of us to help we could probably manage on a day by day basis.

When booking flights and hotels I requested assistance and a room with facilities for disabled people. I have to say from the moment of reaching our local airport the service we received was excellent from the airlines, ground staff, taxi drivers and hotel staff.

My husband's brother lives in Malaysia, and he and his wife (a nurse) offered to have him for a few nights in order to give my daughter and myself some rest at night. This for me was one of the best parts of the holiday. (I haven't had a break for the last 2 years from being his main carere day and night) sadly on the morning we were due to move on, he decided to get himself up with no assistance, fell and sustained a broken nose, skull and a horrible laceration above his right eye. He was rushed to hospital by ambulance. Here again he received excellent care, but he had to be admitted for a short stay. Thankfully the fractures were stable and well aligned and he appeared to have no other effects from the fall so he was discharged. We changed our travel plans to allow a few more days rest in the hotel where my daughter and I had been staying. The staff at the hotel can only be described as amazing in the care and support they provided.

Sadly my husband has deteriorated further, however, the whole experience and expense has been worthwhile. On one of the few occasions he started a conversation with me, he said he did appreciate the holiday and was pleased we went.

If any of you are planning a long haul holiday I would certainly recommend Malaysia and Singapore as places to visit. Both, but in particular Singapore have very good facilities for people with disabilities.

Love to you all battling the challenges of PSP day to day.

Peter3.

[hmfsli]

I am so pleased your holiday went well despite the accident. Making memories like these is so important when the road ahead is full of challenges.

[dllera]

I am so happy for you! Glad you made it. You'll treasure the memories!

[Peter2]

Yes you are both absolutely right about having some happy memories as we go along the psp path. Thank you for your replies. Peter3.

[Kathryn]

Thank you for the description of your positivive experience of travelling. My husband and I are still able to go to France where we have a small house, however I am finding it difficult to get travel insurance. for him. Can anyone help please?

[hazelb]

I'm so glad you had a good holiday & made some more memories despite your husband's fall.Having help from your family was definitely the right thing to do. Frank & I went on a cruise to the Norwegian Fjords last year but as it was just the two of us I found it hard work even with an adapted cabin & aids to help us. Still glad we did it though...that wa our final holiday.

As for your husband getting up on his own....I sympathise with you as Frank did that at home once sustaining a very nasty blow to the head resulting in 2 black eyes as well as other injuries. After each fall he seemed to deteriorate & his confidence was hit. Unfortunately that's what happens with this horrible disease.

However, you & your husband now have something to look back on with pleasure.

Take care & try to keep smiling. Love Hazel B xx

[john_z]

Thanks for sharing with us your holiday's experience, despite the accident you did it very well.It's a kind of story that we need to read through this difficult road, thanks again.

[jillannf6]

hi peter 2

i am so glad you made it to singapore

i am rluctant ot flyanywhere now and am happy jsut to get away for a few dyas in htis countyr or scotland

i have not had a break for over a year now as the PSP and movoing hav einterefered wiht it

and he bowel problems r not too easy to deal with eihter

lol JIll

[Peter2]

Hi Jill,

I frequently read your blogs and thank you for responding to mine.

Whilst it's quite a bit of effort to make all the arrangements for a holiday, it is certainly worth having a break. I hope you do manage to get away at some stage.

Best wishes

Peter3

[jillannf6]

HI alll

we r inte4nding to have a hsor tbreak in MARCH WHEN THE WEAHTER MAYH BE BETTER

PROB GOING TO S SCOTLAND again a sthe travellign si easy and no problems with motorway hold ups

lol JIll

[Peter3]

Hi Jill,

Hope you make the holiday in Scotland. The weather should be better that it is currently!

Best wishes

Peter2.