Mayb silly question

[Harrywogan]

Have to ask all you lovely suffers of PMR, do you still reduce pred if you are in pain with other problems,for me it's my leg soft tissue damage, spoke to my dentist about it and said I've over stretched it, got a good laugh, on leaving I said thanks doc easer to see you than GP he then said thy were just lazy I had to laugh ,xx

[piglette]

If you have any pain or illness, it is usually a good idea not to reduce as PMR is quite sensitive to pain generally. In the case of illness you can use sick day rules. When I had a hip replacement it caused me to have a flare with a CRP of 412!!

[Harrywogan in reply to piglette]

Thanks Piglette x

[Rosina1871 in reply to piglette]

Wow 412. Thought mine was high when I was diagnosed - 134

[piglette in reply to Rosina1871]

That was the only time it got that high!!

[DorsetLady PMRGCAuk volunteer]

If you are sure the pain is NOT PMR you can reduce...and remember you can take other painkillers with Pred [except for ibuprofen, unless in topical get form and used sparingly]

Not a silly question...

[Harrywogan in reply to DorsetLady]

Thanks DL, just sometimes you feel silly and you can't make up your mind what to do, did up pred for 10 days and then came down made no difference, getting phyo and have more pain at the moment hoping that helps soon, take pain relief at bed time. X

[DorsetLady PMRGCAuk volunteer in reply to Harrywogan]

As they say a problem shared is a problem halved -why we are here😊.. and better than turning it over and over in your mind and getting nowhere.

[SnazzyD]

I had to read that a couple of times; I thought you’d made a mistake. It’s like my dog’s vet was the one who diagnosed my quinolone induced Achilles tendonopathy, not my GP or prescribing oncologist.

[Harrywogan in reply to SnazzyD]

Love that Snazzy lol

[Pixix]

Yes. I do. Had 24/7 chronic pain for 15 years, & acute pain for 5. If I didn’t I’d be on 15mg for life. I can nearly always recognise the pain that comes from other issues, fortunately.

[PMRpro Ambassador in reply to Pixix]

Personally, if pred works to reduce the pain when nothing else is available - I don't care if it is something other than PMR.

[Missus835 in reply to PMRpro]

Will you be my rheumy? She's wanting me to reduce 2.5 mg per week til I get down to 10 and came at my GP with a nasty email as to why I wasn't lower. Now they're both on board with this. Currently at 14, supposed to be at 12.5 according to her "plan". Pain increased at 15, so I'm trying 1 mg. steps. Will be staying at 14 for another week maybe. They're actually "policing" my 1 mg. tablets which I had a few set aside. Can't get Rx til Feb. 9. I believe rheumy may have forgotten about the osteoporosis and fractures. 🙄

[PMRpro Ambassador in reply to Missus835]

She is crackers!!!