I'm new here- made a couple of comments and have followed conversations, gleaning invaluable info about taking things slowly - both with tapering and lifestyle! Thank you to all you generous-hearted contributors in helping my understanding of the condition.
I now have a specific query, if anyone can help.
I had my diagnosis in mid June and was started on 15mg prednisolone.
Thrown into the mix - I contracted covid in mid July - felt I got off lightly having had 2 jabs - rough for a few days then picked up. Though a week after, I started feeling more fatigued. My energy levels hadn't been great, but that was all to be expected from the PMR.
After 6 weeks on 15 mg, my bloods showed CRP down - undetectable levels - but blood viscosity still up - (my GP surgery doesn't use ESR) I was recommended by one GP to reduce to 14mg. A week later another GP I had to consult on another matter said, looking at my blood results, I could go down to 10mg and thought the raised viscosity could be the covid. That reduction sounded too drastic to me so taking advice from what I've read here, I reduced to 12.5mg which I've been on for 11 days.
Two days ago I developed what I think may be bursitis in one knee - I understand this is associated with PMR. It's not painful but just above my knee feels enormous (doesn't look it) and doesn't bend very readily - feels a bit pressured.
So, my questions.....
I am basically confused as to what constitutes a flare and therefore an indication that I'm reducing dosage too quickly.
Does fatigue itself indicate this - though personally I may be suffering from post-covid fatigue anyway.
Is the pain-free knee condition - bursitis?! - an indicator?
Thank you for reading my rather long post....