Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for August 2021

Cbd

Hi anyone use CBD oil here I know it’s not legal everywhere! I never even knew we had a cannilboiled system. It’s extremely good for sleep pain and anxiety....

Hi anyone use CBD oil here I know it’s not legal everywhere! I never even knew w...

Uglow

•3 years ago

24 Replies

omeprazole, adcal and prednisilone

Can someone please remind me of the mantra for taking these ? I am sure i read not to take Omeprazole with Pred as it affects absorption and know for sure that...

Can someone please remind me of the mantra for taking these ? I am sure i read n...

larkthebark

•3 years ago

7 Replies

Memory.

I started on steroids for PMR in March on 15 mg now down to 9mg no problems with pain, but I have noticed I am making lots of mistakes, like sending text...

I started on steroids for PMR in March on 15 mg now down to 9mg no problems with...

Gardenbay

•3 years ago

17 Replies

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Blood in eyes

Anyone experienced a broken blood vessel in their eye? Last night I rubbed an itch in my eye and now it looks terrible, full of blood. The optometrist told me...

Anyone experienced a broken blood vessel in their eye? Last night I rubbed an it...

Alebeau

•3 years ago

21 Replies

Travel with Tocilizumab

Hi, wondering if anyone has advice regarding travel with Tocilizumab. I am travelling to Canada in September ( 9 hr BA flight from London) and will need to...

Hi, wondering if anyone has advice regarding travel with Tocilizumab. I am trave...

Hiland

•3 years ago

14 Replies

New to HealthUnlocked

I am new here. Looking to see how everyone else handles PMR. With prednisone, life is good. I am tapering off of it now. Down from 20 mg to 13 mg. Still...

I am new here. Looking to see how everyone else handles PMR. With prednisone, ...

deeinkc

•3 years ago

4 Replies

Vaccines and relapses

Since my 2nd Pfizer shot on August 4th my GCA has flared up, the first time in 4 years and my PMR flared up pretty bad but has calmed down now. Then this past...

Since my 2nd Pfizer shot on August 4th my GCA has flared up, the first time in 4...

Sally001

•3 years ago

11 Replies

Overview of research re covid vaccine boosters

Like my last doomscrolling opportunity, one is left with more questions than answers. Still, it's interesting to read about the wide variance in findings...

Like my last doomscrolling opportunity, one is left with more questions than ans...

HeronNS

•3 years ago

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PMR a question

Has anyone done fasting. I watched a very interesting documentary yesterday on the value of fasting, fights inflammation, reduces risk of heart disease,...

Has anyone done fasting. I watched a very interesting documentary yesterday on ...

Truckfoot

•3 years ago

39 Replies

Advice needed please

I have been using the slow taper method and have reduced my Pred from 10 to 9 and this is my full week on 9. I had intended to start tapering down to 8 but I...

I have been using the slow taper method and have reduced my Pred from 10 to 9 an...

Rymer

•3 years ago

9 Replies

Calcium qty to take daily for bone strength

Can someone help me with what is the best advised quantity of calcium to take daily and in what forms?

Can someone help me with what is the best advised quantity of calcium to take da...

Bennijax

•3 years ago

4 Replies

Knees!

Recently upped the intensity of exercise and added in a bit of running to my walks. Bad idea - have been left with pain on the inside of my knees. I associated...

Recently upped the intensity of exercise and added in a bit of running to my wal...

artisam

•3 years ago

35 Replies

Useful reading on autoimmune diseases

Article: https://apple.news/Aiuz1aLBIR4Oxi8WDWY-kwA

SheffieldJane

•3 years ago

18 Replies

My Vit D results. Are these OK?

Hi All. Had a (private) Vit D test as PMRPRO recommendation and the result is: Hydroxyvitamin D2 - 2.8 nmol/l; Hydroxyvitamin D3 - 56 nmol/l. Total Vitamin D...

Hi All. Had a (private) Vit D test as PMRPRO recommendation and the result is: ...

LBM1953

•3 years ago

2 Replies

Just A Quick Intro from a Newbie

Good evening. Semi-diagnosed with PMR yesterday after eight months, multiple rabbit holes and tests. Normal inflammatory markers. Right shoulder subdeltoid...

Good evening. Semi-diagnosed with PMR yesterday after eight months, multiple rab...

Stickgal316

•3 years ago

13 Replies

Help please: Posting for a friend; panic attacks, AF ; Neuropathy ; 8 weeks post Parathyroid removal op; NOT doing well; Over-medicated??

A dear friend needs help. I am doing all I can to help support her and help calm her down. She is 80 years old. *She suffers with neuropathy in her feet and...

A dear friend needs help. I am doing all I can to help support her and help calm...

Poppy_the_cat

•3 years ago

38 Replies

Methotrexate

Hi I just started methotrexate a month ago. I just got my labs done and my liver enzymes are normal. The doctors says I can only have one or two drinks a...

Hi I just started methotrexate a month ago. I just got my labs done and my liver...

13184

•3 years ago

16 Replies

Who should receive a 3rd COVID-19 dose according to the CDC

I just received this email from Tufts Medical Center in Boston, Massachusetts and it's another confirmation as to who is really immunocompromised. I hope this...

I just received this email from Tufts Medical Center in Boston, Massachusetts an...

kulina

•3 years ago

24 Replies

Pmr

It’s just dawning on me that pmr is serious. I’m scared I’m not going to ever get better. This site saves me. I can’t believe there’s no great continuity from...

It’s just dawning on me that pmr is serious. I’m scared I’m not going to ever ge...

Uglow

•3 years ago

38 Replies

Methotrexate and rib pain

I am on week 3 of methotrexate by injection (low dose) I have developed a severe pain in my side in the rib cage. It hurts to take a deep breath.Having a very...

I am on week 3 of methotrexate by injection (low dose) I have developed a sever...

Linny3

•3 years ago

29 Replies

Adrenal

Hi please can you explain as me and hubby are at loggerheads lol if I became unwell in say a accident what Is the reason I carry card. I know to alert medics...

Hi please can you explain as me and hubby are at loggerheads lol if I became unw...

Uglow

•3 years ago

25 Replies

Nettle Tea and the Adrenal Glands

As I am now on 6Mg of Pred/day and thus approaching (or maybe already in) the “Adrenal Zone”, I was interested to read this in a book on Natures’ Pharmacy....

As I am now on 6Mg of Pred/day and thus approaching (or maybe already in) the “A...

Lauterbach

•3 years ago

50 Replies

Follow up with the doctor. Markers down but still in pain

Had my first follow up since diagnosis and starting on pred (15mg for four days not much improvement so 20mg since mid July) Much improved but still quite a...

Had my first follow up since diagnosis and starting on pred (15mg for four days ...

Buttonshutton

•3 years ago

24 Replies

Can you live a hong healthy life taking 7 mg of prednisone indefinitely?

Bottom line: I feel good on 7 and feel like garbage on 6.5 ( been on 6.5 for over a month.) I have no inclination to go to 6 mg of prednisone because I feel...

Bottom line: I feel good on 7 and feel like garbage on 6.5 ( been on 6.5 for ove...

Blurry62

•3 years ago

32 Replies

Needing help on my condition

Help please reduced to zero presdilone in start of January 2021. Over the past few weeks I have noticed lots of symptoms returning. Main ones are stiff neck...

Help please reduced to zero presdilone in start of January 2021. Over the past f...

Jizer

•3 years ago

17 Replies

Roactemra Tocilizumab - lab out of stock - advice needed please.

Some of you may remember that I am taking Tocilizumab injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had...

Some of you may remember that I am taking Tocilizumab injections (only) regularl...

Frenchduck

•3 years ago

31 Replies

New Urinary incontinence

This week I seem to have developed a real urgency and have started to empty my bladder as soon as I realise I need to go. Have had a slight urgency for a...

This week I seem to have developed a real urgency and have started to empty my b...

HappyDiamonds

•3 years ago

68 Replies

Hearing loss update

Hi Everyone Who knew that these autoimmune disorders have a mind of their own. I am getting used to living(?) with only one good ear. Now I just say I am...

Hi Everyone Who knew that these autoimmune disorders have a mind of their own. ...

whitefishbay

•3 years ago

24 Replies

Amazing GP tele call and new diagnosis

Amazing GP tele catch up. GP phoned this am. I have new diagnosis…. Not PMR but Arthritis. All done by phone. One good thing she is chasing the Dexa Scan so...

Amazing GP tele catch up. GP phoned this am. I have new diagnosis…. Not PMR but...

Suffererc

•3 years ago

17 Replies

Abnormal liver markers

I have got down to 3.5 mg, been on steroids for 5 years, I was recently in hospital when they did a blood test and said there is an issue with my liver...

I have got down to 3.5 mg, been on steroids for 5 years, I was recently in hospi...

1964-karina

•3 years ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2021

Cbd

omeprazole, adcal and prednisilone

Memory.

Blood in eyes

Travel with Tocilizumab

New to HealthUnlocked

Vaccines and relapses

Overview of research re covid vaccine boosters

PMR a question

Advice needed please

Calcium qty to take daily for bone strength

Knees!

Useful reading on autoimmune diseases

My Vit D results. Are these OK?

Just A Quick Intro from a Newbie

Help please: Posting for a friend; panic attacks, AF ; Neuropathy ; 8 weeks post Parathyroid removal op; NOT doing well; Over-medicated??

Methotrexate

Who should receive a 3rd COVID-19 dose according to the CDC

Pmr

Methotrexate and rib pain

Adrenal

Nettle Tea and the Adrenal Glands

Follow up with the doctor. Markers down but still in pain

Can you live a hong healthy life taking 7 mg of prednisone indefinitely?

Needing help on my condition

Roactemra Tocilizumab - lab out of stock - advice needed please.

New Urinary incontinence

Hearing loss update

Amazing GP tele call and new diagnosis

Abnormal liver markers

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