Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,586 members • 38,679 posts

All posts for July 2019

A Study to investigate the liver function of patients taking Methotrexate and risk stratify them accordingly – STrATIFy

I have received a letter from the hospital inviting me to take part in the above study. They want to study people taking Methotrexate and people who have...

I have received a letter from the hospital inviting me to take part in the above...

Omanain

•5 years ago

2 Replies

PMR/ MS Urology link?

Seeking other experiences re Urology. I have had some difficulties since Dec 18 and eventually attended a Urology clinic to be advised that I had been...

Seeking other experiences re Urology. I have had some difficulties since Dec 18...

Jantayl

•5 years ago

2 Replies

Symptoms persist

Had a Rheumy appointment last Friday and had bloods done the previous Monday. CRP <5. No ESR requested. I have tapered from 40mg pred down to 17.5 in a...

Had a Rheumy appointment last Friday and had bloods done the previous Monday. CR...

polymy

•5 years ago

23 Replies

Want to take advantage of all our features? Just log in!

GCA

After a week spent at Mayo, I was diagnosed with GCA back in November. I started on 65 mg of prednisone and this past March started Actemra. I do not, nor...

After a week spent at Mayo, I was diagnosed with GCA back in November. I starte...

luv2read

•5 years ago

11 Replies

Curious... some of my symptoms have improved a lot since a 3 day water fast last weekend. And, my ESR dropped "back to normal" (doc)

My history: I was diagnosed with PMR at the end of May. I'd developed stiffnesss and pain in my pelvic girdle overnight during Xmas week gone, 2018. Then...

My history: I was diagnosed with PMR at the end of May. I'd developed stiffnesss...

SoulNature

•5 years ago

14 Replies

11 days back at 10mg

Hello All, just thought I would give an update. I have been back on 10mg of pred from 8.5mg for 11 days now following all your expert advice and feel so much...

Hello All, just thought I would give an update. I have been back on 10mg of pred...

Iloveholidays

•5 years ago

7 Replies

METHOTREXATE Injection or Pill form

Been on Methotrexate 15 mgs for a good while now 5 months. Always had nauseasness problems even taking Folic Acid the day after. Its been suggested I change to...

Been on Methotrexate 15 mgs for a good while now 5 months. Always had nauseasnes...

Blomps

•5 years ago

31 Replies

Overdoing it or relapse?

I have been tapering pred from 18mg at 1/2 every 2 weeks and now at 16, but after a short spell away with lots of driving, pain in hips and shoulders is...

I have been tapering pred from 18mg at 1/2 every 2 weeks and now at 16, but afte...

spearce

•5 years ago

9 Replies

Low in energy and mood

I have returned to 5 mg after a period of trying to get rid of back and hip pain with increasing my dose. It didn't help so my physiotherapist have me...

I have returned to 5 mg after a period of trying to get rid of back and hip pain...

Pirnilla

•5 years ago

21 Replies

Stressing

Hi, I am now 5 weeks after diagnosis and still on 20 mg pred, told to reduce to 15 mg but pain came back, I am was told to go back to 20mg until after the next...

Hi, I am now 5 weeks after diagnosis and still on 20 mg pred, told to reduce to ...

Buderim

•5 years ago

30 Replies

Grieving process and Onset of pmr

Hi all, I developed my PMR about three months after my best Friend died. The last few months of his life I was involved in looking after him when his wife...

Hi all, I developed my PMR about three months after my best Friend died. The las...

Kaaswinkel

•5 years ago

28 Replies

Can I increase my dose for a day?

Hello! I have had a very unavoidable busy three days (my daughters 40th birthday and grandson visit. Now have relatives to stay 😊)and finding it hard to...

Hello! I have had a very unavoidable busy three days (my daughters 40th birthda...

Songbird69

•5 years ago

15 Replies

Leg cramps and falling asleep

I'm new here If I walk more than 80 yards I get sever cramps in my lower legs which go after I sit for about 5 mins. I have had the blood pressure thing that...

I'm new here If I walk more than 80 yards I get sever cramps in my lower legs wh...

Granny72

•5 years ago

31 Replies

Appreciation to PMR pro

Always welcomed your informed advise. I have been off prednisone for over a year and symptom free. In my case, a slow controlled taper worked.

Always welcomed your informed advise. I have been off prednisone for over a yea...

BloomingtonIndiana

•5 years ago

26 Replies

Niacin

Thought I read a recommendation for Niacin here....now I can’t find it. I went out and bought some. Anyone have info regarding Niacin and PMR?

Thought I read a recommendation for Niacin here....now I can’t find it. I went ...

Gary1310

•5 years ago

7 Replies

IT issues again

Just to let everyone know it looks like we are experiencing more IT problems. These issues mean we are having to log back in to our accounts all the time. If...

Just to let everyone know it looks like we are experiencing more IT problems. T...

Yellowbluebell

•5 years ago

89 Replies

Sitting for a while

Does anyone else have trouble sitting for any length of time? I can manage an hour or so at work or in front of the tv then I have to get up and move. Long...

Does anyone else have trouble sitting for any length of time? I can manage an h...

teesher

•5 years ago

16 Replies

Cautionary tale...

After nearly 10 months of doing perfectly all right on no sugar and no white carbs, for no good reason I succumbed this morning in M&S Foodhall to the...

After nearly 10 months of doing perfectly all right on no sugar and no white car...

Marijo1951

•5 years ago

34 Replies

Coffee

...find myself wanting more coffee in the afternoon probably for a boost of energy. Should I limit coffee? Or go for that boost? PMR,down to 8 mg.

...find myself wanting more coffee in the afternoon probably for a boost of ener...

Gary1310

•5 years ago

20 Replies

Walk funny

Wondering if I will ever walk normal again. I have limped for about 2 years ....was diagnosed in January withPMR. I am reducing from 20 mg to now, 8 mg. I...

Wondering if I will ever walk normal again. I have limped for about 2 years ......

Gary1310

•5 years ago

17 Replies

Stubborn

Dear Newbies just a word of warning! I am three years into having Polymalgia. Really pleased with myself that I had reduced pred to 3.5. For the last few...

Dear Newbies just a word of warning! I am three years into having Polymalgia. R...

Xanthe12345

•5 years ago

17 Replies

Tapering disaster 🤦‍♀️

Tapering question ? After two weeks of trying the step from 15mg to 12.5 which has been a disaster sweating day and night and muscles aching I’m going to try...

Tapering question ? After two weeks of trying the step from 15mg to 12.5 which h...

CSMM

•5 years ago

36 Replies

Tenosynovitis or bursitis vs PMR flare

Hello PMR experts! I’ve been having a very rough ride lately. I think I’m having a PMR flare, but I’ve also got a few other issues to complicate things. I’ve...

Hello PMR experts! I’ve been having a very rough ride lately. I think I’m having...

Ciar

•5 years ago

16 Replies

About to drop to 7.5

My doc said I could drop to 7mg following successful drop to 8. Decided to go for 7.5. I’ve read on here that some people struggle with this dose. Is this the...

My doc said I could drop to 7mg following successful drop to 8. Decided to go fo...

Rosina1871

•5 years ago

24 Replies

Short synacthen test

I had this test back in April On 5mg. Only got report back today (3 months later) and need some advice please. (Pmr/GCA 4yrs) My baseline was 343 but only rose...

I had this test back in April On 5mg. Only got report back today (3 months later...

Carrollee

•5 years ago

25 Replies

Gca and lower legs cramps

Hello again. As some of you know, I'm currently awaiting the results of a temporal artery biopsy. My ophthalmologist feels that I don't have gca as my bloods...

Hello again. As some of you know, I'm currently awaiting the results of a tempor...

Linda3009

•5 years ago

24 Replies

Wrong dose taken! change my name to dingbatbonnie

I KNOW I have read about this before..but just double checking. I JUST took 2 FIVEmg tablets instead of 2 ONEs. but thankfully stopped before taking the next...

I KNOW I have read about this before..but just double checking. I JUST took 2 FI...

yogabonnie

•5 years ago

20 Replies

Good progress but a way to go

Went to see my GP yesterday and progress report was good - inflammatory markers normal, bone density normal. I started on 30mg in November last year because I...

Went to see my GP yesterday and progress report was good - inflammatory markers ...

Mikeysaab

•5 years ago

5 Replies

Update 3

I spent quite a time on the phone yesterday down to Yeovil, by which time I was tired. I got hold of the discharge facilitator and was able to enlighten her on...

I spent quite a time on the phone yesterday down to Yeovil, by which time I was ...

prunus

•5 years ago

54 Replies

Rhumy appointment just left me gob smacked

I was not looking forward to the appointment an had equipped my self with all sorts of stats and questions in anticipation for her something else she wanted to...

I was not looking forward to the appointment an had equipped my self with all so...

mad-country-lover

•5 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2019

A Study to investigate the liver function of patients taking Methotrexate and risk stratify them accordingly – STrATIFy

PMR/ MS Urology link?

Symptoms persist

GCA

Curious... some of my symptoms have improved a lot since a 3 day water fast last weekend. And, my ESR dropped "back to normal" (doc)

11 days back at 10mg

METHOTREXATE Injection or Pill form

Overdoing it or relapse?

Low in energy and mood

Stressing

Grieving process and Onset of pmr

Can I increase my dose for a day?

Leg cramps and falling asleep

Appreciation to PMR pro

Niacin

IT issues again

Sitting for a while

Cautionary tale...

Coffee

Walk funny

Stubborn

Tapering disaster 🤦‍♀️

Tenosynovitis or bursitis vs PMR flare

About to drop to 7.5

Short synacthen test

Gca and lower legs cramps

Wrong dose taken! change my name to dingbatbonnie

Good progress but a way to go

Update 3

Rhumy appointment just left me gob smacked

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive