11 days back at 10mg

[Iloveholidays]

Hello All, just thought I would give an update. I have been back on 10mg of pred from 8.5mg for 11 days now following all your expert advice and feel so much better, no more tears and in last 2 days no aching arms. Was definitely the right thing to do and as advised I will stay on 10mg for a month and if all is well start to tapper again to 9. The hots sweats have come back but that could also be to do with too many bad carbs, being a comfort eater and feeling low I fell off the wagon but I am feeling more positive now and know I need to sort out my diet.

I’m off on a 2 night mini break tomorrow, my first trip in 6 months since dx and my foot op, it’s just 2 1/2 hours drive away, I have rested all weekend in preparation and am really hoping the journey will not be too exhausting. I am always so thankful to all the advice on here, even preparing for holidays. Thank you 😊

[PMRpro Ambassador]

Don't be in a hurry to get below 10mg - one group found staying at 10mg for a year reduced the rate of flares from 3 in 5 to 1 in 5. Which is considerable.

[PMRCanada]

Thanks for the update. I too seem to find that my pred dose at the 9mg/8.5mg tricky and I had a flare the beginning of May at this level which caused me to also go back up to 10mg for awhile. Managed to taper again recently down to 9.5mg with no issues, but as soon as I started to introduce 9mg, the same symptoms re-emerged as last time, so 9.5mg it is for me for at least a few months, or more, as this seems to be the dose my body needs at this time given the disease activity.

Enjoy your time away, such trips can be so good for one's mental state providing a sense of "normalcy" and ability to live life without PMR related restrictions.

[Blearyeyed]

Have a lovely trip , and so glad that things have improved for you.

Don't forget to pace yourself and take lots of rests between activities this weekend and I'm sure you will have a lovely time.

[Louisepenygraig]

Enjoy your mini break and make sure you have breaks on the journey too.

[piglette]

You may find it better to reduce by just .5mg at a time under the 10mg level.

[SheffieldJane]

Have a lovely holiday armed with your growing expertise.

[Baileyw06]

Have a great holiday.