I was not looking forward to the appointment an had equipped my self with all sorts of stats and questions in anticipation for her something else she wanted to discuss face to face ....... .
She asked me how I was, as when I last spoke to her over the phone back in May after stopping the pred's a second time for this new prescription coming in the post , I told he if I had a large box of Tramadol one side of me and a Vet offering euthanasia the other, I would at this moment in time chose the vet .that's when she said go strait back on to 20 mg pred.
I was gob smacked ( with the something else bit yesterday)
She apologised for making a mistake ....... even though she confirmed after reading the PET Scan that I had PMR and there is a lot of inflammation, she received my blood test results a couple of days later, just looked at the inflammation levels that read 13.2 and thought she would try controlling my PMR with just pain killers ????????.
She had not looked back at my previous blood results until I mentioned euthanasia over the phone. If I remember correctly inflammation levels were around the 147 mark
So she is really sorry and apologised again for her mistake ?????
I said that had cost me another 2 months of agony plus resorting to Prozac .
BUT if I now start following her reduction of 2 1/2 mg preds every 3 weeks , even though the last flair up is still in my legs ?????
I will be fit and well by the end of the year.
I did mention the slow slow dead slow , but she clearly was not interested and said it would not make any difference to the taper , I was to tired to argue with her.
But if I said lets have a vote on which taper plan I will be doing ( when the flair has gone)
Her magic one to be fit and well at the end of the year
or the slow slow dead slow taper
I think I know which one the votes would be 100% for .
again I will say god knows where I would be with out this group , perhaps in the Que for the Vets .
Take care
thank you all for your support help and information xx