Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,568 members • 38,621 posts

All posts for July 2019

Fat face

Face almost back to normal - on low dose Pred now - sit up at night when feel it swelling

Face almost back to normal - on low dose Pred now - sit up at night when feel it...

Daffodilia

•5 years ago

14 Replies

Back to square one

Had my first zolendronic acid infusion yesterday. Guess I’ve reacted badly to it. Shivers, temperature, swelling, aching etc. All the classic PMR symptoms....

Had my first zolendronic acid infusion yesterday. Guess I’ve reacted badly to it...

Mimma

•5 years ago

15 Replies

Thank you

Thank you to everyone who responded to my question about Remission to PMR.

Summerrental

•5 years ago

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Want to know about Actemra

My Doctor is thinking of putting me on Actemra. I would like to know what other people think of this. Seems scary.

My Doctor is thinking of putting me on Actemra. I would like to know what other ...

confused2

•5 years ago

16 Replies

A letter to my Chronic Pain and Fatigue from Auntie Bleary-eyed aka the Bin Lady!!

Dear Chronic Pain and Fatigue, If you are planning to spend the whole day with me could you at least make me a coffee and bring me some biscuits! Thank you...

Dear Chronic Pain and Fatigue, If you are planning to spend the whole day wit...

Blearyeyed

•5 years ago

93 Replies

Had to post this...

A friend sent me this on Facebook... I just had to share it with you.

lfu2

•5 years ago

14 Replies

Not always PMR

Hope there may be something of value in this post. I have had PMR since December 12th 2018. On June 2nd. I had the experience of fainting, while in my...

Hope there may be something of value in this post. I have had PMR since Decembe...

Noosat

•5 years ago

9 Replies

Off Piste again!

Hi, Just to thank all those of you for your lovely replies and "likes" to my original post. It makes it all so worthwhile. Paddy

Hi, Just to thank all those of you for your lovely replies and "likes" to my ori...

Charlie1boy

•5 years ago

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Update 2

I rang the ward last evening. The ward Yeovil had approached at Hillingdon have refused to take him because of his age. They are going to do another blood test...

I rang the ward last evening. The ward Yeovil had approached at Hillingdon have ...

prunus

•5 years ago

29 Replies

Relapse update

Hi well it’s a week since in have been in hospital and they are looking at Sunday. 3 rd attempt get out Today my steroids are again IV and starting 500 for 3...

Hi well it’s a week since in have been in hospital and they are looking at Sunda...

Bfp1

•5 years ago

8 Replies

Edema anyone?

Do any of you have edema? That is swelling of the ankles and feet? I'm having an awful time with it. I take a water pill in the morning to pee it all out,...

Do any of you have edema? That is swelling of the ankles and feet? I'm having ...

Trevgrrl

•5 years ago

29 Replies

Synovitis in finger joints

Anyone with PMR have/had this? Trying to guesstimate which way this is going...

Devedaaee

•5 years ago

14 Replies

ESR and CRP ....I am confused!!!

I just returned from having my standard blood work taken and the results are in (very efficient, I might add) and I note that my white blood count is up to 9.0...

I just returned from having my standard blood work taken and the results are in ...

Cairocat

•5 years ago

20 Replies

Severe pain all over body with reduction

Hi, I have been on Pred for almost 5years. I was doing well with my reduction getting down to 2.5 on dead slow method. A new Doctor arrived at the Surgery and...

Hi, I have been on Pred for almost 5years. I was doing well with my reduction ge...

Attic

•5 years ago

22 Replies

Off Piste

This one is really for Jinasc, who has encouraged me to attach a photo for the first time! So, this is a picture of two clematis currently out in our small...

This one is really for Jinasc, who has encouraged me to attach a photo for the f...

Charlie1boy

•5 years ago

17 Replies

Protection against Lower Leg Bruising

I've noticed a few posts about easy leg bruising from Pred use and how to protect them from knocks? Just an idea, but when cross-country running last winter,...

I've noticed a few posts about easy leg bruising from Pred use and how to protec...

Hidden

•5 years ago

12 Replies

Rapid tapering

Hi guys, Having had brilliant results over the first 3 weeks of treatment on 20mg predisolone my rheumatologist is dropping me down to 15mg today for 2 weeks,...

Hi guys, Having had brilliant results over the first 3 weeks of treatment on 20m...

Dasein

•5 years ago

39 Replies

Update on slowly reducing 2.5

Hi everyone and thanks for all the advice. I decided to go back up to my dose in November, which was 3 mg for 3 days then 2.5 mg one day and then repeat. As...

Hi everyone and thanks for all the advice. I decided to go back up to my dose in...

9lives

•5 years ago

1 Reply

Long haul flights

Hello all, I've a long haul flight booked for a holiday (booked about 6 months ago pre-PMR!) I've read on this forum that others do long haul no problem...but...

Hello all, I've a long haul flight booked for a holiday (booked about 6 months a...

Daisyfield

•5 years ago

23 Replies

Reducing dosage

Since starting to take Prednisolone in early 2012 on a dose of 15mg, I am now at a dose of 1mg and desperately hopeful that I will be able to stop taking it...

Since starting to take Prednisolone in early 2012 on a dose of 15mg, I am now at...

twinbulls

•5 years ago

3 Replies

And so, conventional wisdom may not be wisdom after all...

I have never believed that slathering myself in sunscreen and preventing the development of natural protection on my lily white...

I have never believed that slathering myself in sunscreen and preventing the dev...

GOOD_GRIEF

•5 years ago

25 Replies

Your support is wonderful

Thanks to all who have taken the time to contact me. It's good (if galling) to hear that I'm not the only one with a stubborn consultant. I work as a hospital...

Thanks to all who have taken the time to contact me. It's good (if galling) to h...

Linda3009

•5 years ago

17 Replies

Re cap , update and would really appreciate some advice

My last post was after my PET scan 10th of May which was followed by an appointment strait after with the Rhumatologist , I had reduced the preds down to 5 mg...

My last post was after my PET scan 10th of May which was followed by an appointm...

mad-country-lover

•5 years ago

12 Replies

PRED, UP or DOWN..??

Need help. Pred up or down??? I joined here a few weeks ago but don’t write much. Just read and learn for the most part. I said before that I have PMR...

Need help. Pred up or down??? I joined here a few weeks ago but don’t write much...

Chopin002

•5 years ago

16 Replies

Update on OH

My dear husband is still in Yeovil hospital and waiting for a bed to become available here in rehab. As a matter of interest his CRP -which was 170 at the...

My dear husband is still in Yeovil hospital and waiting for a bed to become avai...

prunus

•5 years ago

43 Replies

Pred. side effect - palpitations

Hello All, I started with a right hip problem in March which was diagnosed as arthritic, so was thus prescribed Naproxen which duly relieved a...

Hello All, I started with a right hip problem in March which was d...

Robbian

•5 years ago

3 Replies

Update and questions about GCA

Last week I wrote about a headache that went on too long. I saw the doctor and had blood work done. Results were all wonderful. The doctor suggested I see a...

Last week I wrote about a headache that went on too long. I saw the doctor and ...

TooSore

•5 years ago

6 Replies

Update on cough

Went back on my old tablets (3 days ago) - cough gone.😀

Constance13

•5 years ago

14 Replies

Co-AMOXICLAV and Stomach Pains

Have been on these for a few days and now have permanent stomach ache. Not sure if this is what is causing it. Anyone else had same problem? Thanks

Have been on these for a few days and now have permanent stomach ache. Not sure ...

Hidden

•5 years ago

8 Replies

Early morning stiffness

Maybe this is a silly question, but I’m asking anyway. I have GCA and pmr and am on 11 mg pred. Symptoms seem to be fairly well controlled during the day, but...

Maybe this is a silly question, but I’m asking anyway. I have GCA and pmr and a...

gtate1914

•5 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2019

Fat face

Back to square one

Thank you

Want to know about Actemra

A letter to my Chronic Pain and Fatigue from Auntie Bleary-eyed aka the Bin Lady!!

Had to post this...

Not always PMR

Off Piste again!

Update 2

Relapse update

Edema anyone?

Synovitis in finger joints

ESR and CRP ....I am confused!!!

Severe pain all over body with reduction

Off Piste

Protection against Lower Leg Bruising

Rapid tapering

Update on slowly reducing 2.5

Long haul flights

Reducing dosage

And so, conventional wisdom may not be wisdom after all...

Your support is wonderful

Re cap , update and would really appreciate some advice

PRED, UP or DOWN..??

Update on OH

Pred. side effect - palpitations

Update and questions about GCA

Update on cough

Co-AMOXICLAV and Stomach Pains

Early morning stiffness

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