PMR/ MS Urology link?

[Jantayl]

Seeking other experiences re Urology. I have had some difficulties since Dec 18 and eventually attended a Urology clinic to be advised that I had been retaining almost one litre of fluid - overstretched bladder - and now have intermittent catheter which I hate! The doctor is suggesting link to MS which I was diagnosed with 20 years ago but have had no symptons or isssues since - indeed have remained very active hillwalking, running - not so much since PMR/GCA diagnosed late 2017/early 2018. Could there be a link to the PMR? Would be grateful for any thoughts/ guidance. I have gynaecology/urology appt again in Sept.

Cheers Irene

[SheffieldJane]

I have urinary symptoms with a diagnosis of PMR alone. I have been concerned recently about the small amount of water I pass ( often though)and burning sensations in my bladder. My paternal grandma had MS. I was surprised to read that there are no definitive diagnostic tests for it and like our conditions it is mostly on symptoms. It is what I thought I had initially. PMR and MS are autoimmune conditions I believe. You have prompted me to see my GP.

[Jantayl in reply to SheffieldJane]

There is no history of MS in my family. After a series of unexplained ‘viruses’ my GP - a locum - referred me for MRI scan - then I had a lumber puncture which confirmed MS with comments from the consultant at the time that ‘prognosis is good’. It now all seems to have come back to haunt me as I had tried to forget and got on with my life for the past 20 years. The urinary symptoms you describe sound very similar to my own although I had no idea that I had been retaining so much fluid - hence the reason for the catheter I now have. I hope all goes well when you speak to your GP. I was just curious to see if my bladder issues could have a PMR link for my to explore further when I next attend the urology clinic.