Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,595 members • 38,696 posts

All posts for July 2019

Methotrexate? Who mentioned Methotrexate?!!!!

I had my first visit with the rheumatologist in April last year and subsequent appointments have been with the nurse specialist. She told me on each visit...

I had my first visit with the rheumatologist in April last year and subsequent a...

Omanain

•5 years ago

17 Replies

Very High Sed Rste

Last month, after over two years on prednisone, my sed rate was up to 130. Today it’s 90. My pain has been unrelentless for weeks. I had to go up to 20 mgs...

Last month, after over two years on prednisone, my sed rate was up to 130. Today...

Aleish

•5 years ago

19 Replies

Worried

Got diagnosed PMR about a month ago but doctor seems very surprised I'm not feeling better after taking steriods . He keeps picking up on the fact I had a...

Got diagnosed PMR about a month ago but doctor seems very surprised I'm not feel...

JsyAnne

•5 years ago

17 Replies

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Re Dentistry

New to blog- Jobyway joining in Sorry, I can't find the post re tooth extraction - someone needing a tooth out had been told by her dentist she needed to wait...

New to blog- Jobyway joining in Sorry, I can't find the post re tooth extraction...

jobyway

•5 years ago

7 Replies

Tiredness days

I've had 3.5 years of GCA with classic symptoms of PMR. Have yo -yoed prednisolone medication and have been as low as 2mg recently. Situation was then...

I've had 3.5 years of GCA with classic symptoms of PMR. Have yo -yoed prednisol...

astley123

•5 years ago

12 Replies

Steroid reduction symptoms

In consultation with my G.P. I've been gradually tapering my steroids down by 0.5mg every two weeks. I've now been on 7mg a day for just over a week. For...

In consultation with my G.P. I've been gradually tapering my steroids down by 0....

AltGr

•5 years ago

16 Replies

Update 5

Now heard from OH. expected time of arrival 2pm. :) :) :)

prunus

•5 years ago

29 Replies

Sacro Iliac Ligaments

I have trouble with my SI ligaments but today is off the map! Yesterday I went for an easy walk locally, today my SI ligaments are really playing up! So much...

I have trouble with my SI ligaments but today is off the map! Yesterday I went ...

stellafmdm

•5 years ago

9 Replies

Cardiff Meeting

The next meeting is on Friday 26th July at 11.30 in the Central Library, room 4.

The next meeting is on Friday 26th July at 11.30 in the Central Library, room 4....

slewis

•5 years ago

2 Replies

PMR with no Inflammatory markers

PMR Ok so on advice from doc reducing Peds . No rush 10 then after 3 weeks 10/9 then after 3 weeks 9/8. Then the pain comes back shoulders bicep muscles...

PMR Ok so on advice from doc reducing Peds . No rush 10 then after 3 weeks 10/9 ...

_multistrada

•5 years ago

8 Replies

Update

Hi all. Thanks for all your replies and support. It's been a tremendous help. I thought I'd post an update, so here it is. I was reasonably stable on 50mg...

Hi all. Thanks for all your replies and support. It's been a tremendous help. I ...

Linda3009

•5 years ago

9 Replies

I can't believe this disease!!

I have been doing fairly well handling PMR. Have been on methotrexate for 5 weeks and have decreased pred by 1 mg. All went well. The other day I stood up and...

I have been doing fairly well handling PMR. Have been on methotrexate for 5 week...

Linny3

•5 years ago

24 Replies

Update 4

It has not been an easy week. In fact at times I have despaired. PALS ladies at both Yeovil and Hillingdon have done all they could to help. If it wasn't for...

It has not been an easy week. In fact at times I have despaired. PALS ladies at ...

prunus

•5 years ago

61 Replies

Coming off Pred for tooth extraction?

I have to have a back tooth out, the dentist has advised me that I have to come off Prednisolone a week beforehand to aid healing. Is this common practice? I...

I have to have a back tooth out, the dentist has advised me that I have to come ...

braininjurythepits

•5 years ago

29 Replies

Enteric 2.5 pred

Thought folks might be interested in this . I had to take a photo of the link cos it would not copy for me.

Thought folks might be interested in this . I had to take a photo of the link c...

Suffererc

•5 years ago

7 Replies

Neutrophils and monitoring inflammation etc

Hi all I am no 'chemist' ('help' PMRpro ?) but thought it rather interesting that both times I have experienced as 'flare' or more accurately a response to me...

Hi all I am no 'chemist' ('help' PMRpro ?) but thought it rather interesting tha...

Rimmy

•5 years ago

21 Replies

You'll like this............NOT!

The European League Against Rheumatism (EULAR) and the American College of Rheumatology (ACR) have published nine treatment recommendations. In this slideshow,...

The European League Against Rheumatism (EULAR) and the American College of Rheum...

IdasMum

•5 years ago

31 Replies

MRI results clear, now what?

As the title suggests I've just had the results of my recent MRI scan and there are no significant abnornamilities. So why am I in such pain in both hips? I'm...

As the title suggests I've just had the results of my recent MRI scan and there ...

Griggser

•5 years ago

11 Replies

Reduced Pred from 10 to 8 mg

I reduced from 10mg and have been on 8mg prednisone for 21 days. Just started feeling a little pain in my shoulders, could it be inflammation building back up...

I reduced from 10mg and have been on 8mg prednisone for 21 days. Just started f...

Sadie1024

•5 years ago

26 Replies

Bursitis and swollen and sore legs and feet

Advice please. Slowly reducing prednisolone -now at 6 mg but have hip bursitis and swollen sore legs and feet. Told this is because the steroids have made my...

Advice please. Slowly reducing prednisolone -now at 6 mg but have hip bursitis a...

Lindalang

•5 years ago

26 Replies

Side effects of a low dose of steroids

Hello everyone, I’ve read on here a number of times about recent research which said that the side effects of being on a low dose of steroids, eg under 5mgs...

Hello everyone, I’ve read on here a number of times about recent research which ...

joyce69

•5 years ago

6 Replies

Tapered too much

Help think have overdone the tapering have got down to 4mg Pred and am increasingly uncomfortable with pain and stiffness-PMR since May 18-should I go up to...

Help think have overdone the tapering have got down to 4mg Pred and am increasin...

bakingD

•5 years ago

12 Replies

Hello

Hi! I am clickangel and new to this site. I was diagnosed with PRM in March or 2019. It has been an adventure and one I'm not real fond of but charging thru...

Hi! I am clickangel and new to this site. I was diagnosed with PRM in March or...

Clickangel

•5 years ago

16 Replies

Pill cutter update

Thanks everyone for the advice. I’ll buy one and go from there!

Cyclegirl54

•5 years ago

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Prednisolone and IBS

Anyone contracted Irritable bowel syndrome after taking Preds? Is this among the many side effects that can occur? Thanks.

Anyone contracted Irritable bowel syndrome after taking Preds? Is this among the...

Hidden

•5 years ago

4 Replies

Pill cutter advice

Is there a pill cutter that neatly halves the 1 mg Pred tablets? The 1’s are so small! I seem to be having an issue getting from 17 to 16 mg dose so thought...

Is there a pill cutter that neatly halves the 1 mg Pred tablets? The 1’s are so ...

Cyclegirl54

•5 years ago

26 Replies

Rheumie recommendation wanted Newcastle upon Tyne specialising in PMR

Grateful for recommendations before I start the dreaded Pred. Just been diagnosed by GP. Thank you so much.

Grateful for recommendations before I start the dreaded Pred. Just been diagnose...

Smokygirl

•5 years ago

34 Replies

Feeling disconnected from the Universe because of your GCA/ PMR and Chronic Pain ? Need a pick me up? Try looking up at the sky tonight!

I think that there is a beauty and poetry in the fact that the partial eclipse of the Moon tonight is on the 50 the Anniversary of the Launch of "Mans'" first...

I think that there is a beauty and poetry in the fact that the partial eclipse o...

Blearyeyed

•5 years ago

128 Replies

Living Well with Pain and Illness

Living Well with Pain and Illness by Vidyamala Burch. I have found this book very helpfull. The woman who wrote it also works within the nhs as Breathworks....

Living Well with Pain and Illness by Vidyamala Burch. I have found this book ver...

Teekay2

•5 years ago

7 Replies

And I was doing so well...

ESR and CRP markers through the roof. No increase in PMR systems but Just been admitted to hospital with suspected appendicitis. On the ward, waiting for...

ESR and CRP markers through the roof. No increase in PMR systems but Just been a...

JanetRosslyn

•5 years ago

28 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2019

Methotrexate? Who mentioned Methotrexate?!!!!

Very High Sed Rste

Worried

Re Dentistry

Tiredness days

Steroid reduction symptoms

Update 5

Sacro Iliac Ligaments

Cardiff Meeting

PMR with no Inflammatory markers

Update

I can't believe this disease!!

Update 4

Coming off Pred for tooth extraction?

Enteric 2.5 pred

Neutrophils and monitoring inflammation etc

You'll like this............NOT!

MRI results clear, now what?

Reduced Pred from 10 to 8 mg

Bursitis and swollen and sore legs and feet

Side effects of a low dose of steroids

Tapered too much

Hello

Pill cutter update

Prednisolone and IBS

Pill cutter advice

Rheumie recommendation wanted Newcastle upon Tyne specialising in PMR

Feeling disconnected from the Universe because of your GCA/ PMR and Chronic Pain ? Need a pick me up? Try looking up at the sky tonight!

Living Well with Pain and Illness

And I was doing so well...

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