Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,273 members • 37,962 posts

All posts for July 2019

Tapper withdrawal or not enough pred?

Firstly I just want to say thank you to all contributors to this forum, I don’t post often but follow everyday and learn so much. Pmr dx 6 months ago. Started...

Firstly I just want to say thank you to all contributors to this forum, I don’t ...

Iloveholidays

•5 years ago

38 Replies

Onset

Wondering how long it takes for PMR to present itself. I was diagnosed in January, 2019. Had my first flare in December. About 10 yrs ago my feet started...

Wondering how long it takes for PMR to present itself. I was diagnosed in Janua...

Gary1310

•5 years ago

16 Replies

Is this level low

Hello lovely people I have been feeling unwell for some time, I have Pernicious anemia / B12 deficiency which is treated with B12 injections. I believe this...

Hello lovely people I have been feeling unwell for some time, I have Pernicious ...

Mandymoos8

•5 years ago

9 Replies

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Cold sores

Hello..I have PMR and was wondering if anyone has suffered with cold sores whilst on Pred. I'm on my 4th one in just 3 weeks. Thanks

Hello..I have PMR and was wondering if anyone has suffered with cold sores whils...

Tiffany2

•5 years ago

8 Replies

A mystery to the medical team

Hello everyone I am a complete mystery to my team of doctors, consultants and profs at St Thomas’ hospital in London. I presented with sudden onset double...

Hello everyone I am a complete mystery to my team of doctors, consultants and p...

farzana100

•5 years ago

54 Replies

Curious,2....

An aquantance of mine, an 84 year old man, was diagnosed with PMR about a year ago. His Rheumy put him on a one year reduction plan to zero. I ran into him the...

An aquantance of mine, an 84 year old man, was diagnosed with PMR about a year a...

Manchild

•5 years ago

30 Replies

Chiropractor?

I am dealing with PMR and things are going pretty well ....on 15 mgs with a tapering agenda and pain and stiffness mostly controlled . Before the onset of this...

I am dealing with PMR and things are going pretty well ....on 15 mgs with a tape...

Darcy2000

•5 years ago

34 Replies

Tapering Prednisolone and Blue Card (UK)

If pred dosage is being tapered downwards how should Blue Card be written up please?

If pred dosage is being tapered downwards how should Blue Card be written up ple...

Nuff1

•5 years ago

7 Replies

What a difference a day makes...

Hi everyone, I have no idea if this is PMR related, but I was in the beach this afternoon walking down to the sea when I had an excruciating pain in my left...

Hi everyone, I have no idea if this is PMR related, but I was in the beach this...

Oxford8

•5 years ago

15 Replies

Adrenal function recovery yay!

I just received the results from my second Synacthen Test and it seems that my Adrenal function has recovered all by itself. The only thing I changed is a...

I just received the results from my second Synacthen Test and it seems that my A...

SheffieldJane

•5 years ago

75 Replies

Recovering from PMR - how do I know if I am ok to push myself

I have had PMR for 2.5 years and came off Steroids last August. I see my rheumatologist - only if I ask and it takes months to get an appointment as I am no...

I have had PMR for 2.5 years and came off Steroids last August. I see my rheumat...

cardboardcutout

•5 years ago

29 Replies

Thank you

Thanks to everybody who replied to my post ‘Exhausted’ yesterday, all gratefully appreciated and helpful. Rest yesterday helped and now learning to pace myself.

Thanks to everybody who replied to my post ‘Exhausted’ yesterday, all gratefully...

Buderim

•5 years ago

3 Replies

Woodbridge, Suffolk - Tea and chat

Come and join us next week on Thursday 11th July at 2.00pm Dobbies Garden Centre Grundisburgh Road WoodbridgeSuffolk IP13 6HX

Come and join us next week on Thursday 11th July at 2.00pm Dobbies Garden Cent...

Soosie56

•5 years ago

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Advice on tapering please

I successfully reduced to 4.5mgs a day using DSNS and was OK. Then I got a bug, nasty cough, feeling sick and very tired. After a week with little improvement...

I successfully reduced to 4.5mgs a day using DSNS and was OK. Then I got a bug,...

slewis

•5 years ago

3 Replies

Reducing advice.

Hi, been on predisilone for just over 2 years for Polymialgia. Doc says blood test normal, trying to get off predisilone, down to 2mg but wake up with pain in...

Hi, been on predisilone for just over 2 years for Polymialgia. Doc says blood te...

Cazdud

•5 years ago

8 Replies

Thin skin

Good morning Would appreciate it if any one can answer this question I have very thin skin I’m on steroids morphine blood thinners etc and any little bump...

Good morning Would appreciate it if any one can answer this question I have ve...

Rusty8

•5 years ago

50 Replies

Post Infection taper

Hi, just getting over bad respiratory infection, was on 6mg pred prior to illness, upped it to 7.5 for 1 week GP upped it to 10 mg have been on this for 2wks,...

Hi, just getting over bad respiratory infection, was on 6mg pred prior to illnes...

mtrafter

•5 years ago

7 Replies

Is 20mg a lot?

I folks. I haven't posted for awhile, but I did listen to all your previous advice and made some serious lifestyle changes. It's been quite hard emotionally...

I folks. I haven't posted for awhile, but I did listen to all your previous advi...

BoaterAnnie

•5 years ago

32 Replies

Auto-immune research

For some reason I got an e-mail inviting me to a webinar hosted at the University of Calgary. It involves one of the key researchers of this new type of...

For some reason I got an e-mail inviting me to a webinar hosted at the Universit...

HeronNS

•5 years ago

9 Replies

C Reactive Protein

Hi everyone. Was just wondering if the CPR tests have different reference ranges in UK as opposed to US. I live in US and it says the reference range to be...

Hi everyone. Was just wondering if the CPR tests have different reference range...

lemarie1

•5 years ago

26 Replies

Vascular dementia and PMR related?

Ok, so here's my current paranoia‼️ I was just reading about vascular dementia, and wondering if PMR is related to development of same. Some of my early...

Ok, so here's my current paranoia‼️ I was just reading about vascular dementia,...

Purplecrow

•5 years ago

22 Replies

Improvement or...?

Thought I was doing really well today. I'd slept for 8 hrs without needing to get up in the night and felt better than I had for a long time. Had vacuumed the...

Thought I was doing really well today. I'd slept for 8 hrs without needing to ge...

maria40

•5 years ago

27 Replies

Oh dear back to square one!

In March 2019 I reached zero prednisolone for the second time after being diagnosed in June 2016 with GCA and then PMR in Nov 2017. Sadly this was another...

In March 2019 I reached zero prednisolone for the second time after being diagno...

DevonMichael

•5 years ago

16 Replies

WANTED--PREDNISONE EXPERIENCE! What do you feel when you taper prednisone? Mentally, emotionally & physically.

Diagnosed GCA Feb 2018 : After four flares, I am beginning another taper. Dropped from 25 mg. to 23 and now to 22.5 mg of prednisone. I'd love to know what...

Diagnosed GCA Feb 2018 : After four flares, I am beginning another taper. Droppe...

Blurry62

•5 years ago

92 Replies

Exhausted

Today I am feeling very exhausted and feeling very guilty about it. I have just had a very busy week and today I don’t seem to be able to think or do anything....

Today I am feeling very exhausted and feeling very guilty about it. I have just ...

Buderim

•5 years ago

18 Replies

"This is going to hurt".

Dr Adam Kay wrote this book. On the wonderful PMR forum, nearly every day we have discussed DOCTORS....both their downfalls and their wonderful caring...

Dr Adam Kay wrote this book. On the wonderful PMR forum, nearly every day we...

YuliK

•5 years ago

13 Replies

Good news on bones

Having been on pred for 2.5 years i was a bit apprehensive when i got my DEXA scan results. I’d been diagnosed about 9 years ago with osteoporosis following a...

Having been on pred for 2.5 years i was a bit apprehensive when i got my DEXA sc...

Casia

•5 years ago

15 Replies

CRP at 5.6

Hi, does anyone know how high CRP at 5.6 is I know the normal limit is below 5 but have no idea how high it has to go before it’s a worry. I’m going for a PET...

Hi, does anyone know how high CRP at 5.6 is I know the normal limit is below 5 b...

PMRHortons

•5 years ago

37 Replies

Happy Canada Day 🇨🇦

We are enjoying hot sunny weather in Ontario. Celebrating our good fortune living in a peaceful wonderful country.

We are enjoying hot sunny weather in Ontario. Celebrating our good fortune livi...

alvertta

•5 years ago

15 Replies

Vitamins K2 and D3

I previously posted to say I declined this years infusion for osteoporosis and wished to try bone density improvement myself. I have bought the above vitamins...

I previously posted to say I declined this years infusion for osteoporosis and w...

Urtica

•5 years ago

52 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2019

Tapper withdrawal or not enough pred?

Onset

Is this level low

Cold sores

A mystery to the medical team

Curious,2....

Chiropractor?

Tapering Prednisolone and Blue Card (UK)

What a difference a day makes...

Adrenal function recovery yay!

Recovering from PMR - how do I know if I am ok to push myself

Thank you

Woodbridge, Suffolk - Tea and chat

Advice on tapering please

Reducing advice.

Thin skin

Post Infection taper

Is 20mg a lot?

Auto-immune research

C Reactive Protein

Vascular dementia and PMR related?

Improvement or...?

Oh dear back to square one!

WANTED--PREDNISONE EXPERIENCE! What do you feel when you taper prednisone? Mentally, emotionally & physically.

Exhausted

"This is going to hurt".

Good news on bones

CRP at 5.6

Happy Canada Day 🇨🇦

Vitamins K2 and D3

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