After waiting since last October I had an appointment with a Rheumatologist yesterday. I was referred by my Haematologist who was concerned about the symptoms I was getting which I thought were connected with my GCA. He started by saying he wasn't sure why I was referred. I explained the symptoms I was getting to which he replied 'but you don't have GCA'. According to him GCA only lasts for 2 years at the most 3 and looking at my CRP which was 2, the only true marker according to him, there is no sign of either GCA or PMR. The pains I have in my neck and back are due to Osteoporosis. I don't have Osteoporosis I told him. But you must have because you have been on steroids for 8 years. I told him I had a DEXA scan which came back normal . You can't always believe results from the scan alone. He then proceeded to tell me that I should get off Pred ASAP because there is no need for me to take it. I told him I have been trying for sometime to get from 7 to 6 but because of Adrenal Insufficiency I am finding it very difficult. He said I had to stick with it even through the difficult times and I should be off it within 6 months!!!! He then shook my hand said it was lovely meeting me and said there was no need to see him again. If I had any problems go and see my GP. So once more I am out on a limb. Thankfully I have the support of the Macmillan Nurse for my Polycythaemia which I was diagnosed with 12 months ago. I have had GCA for 8 years and lost the sight of my left eye. I forgot to mention that my blood pressure when I visited him was 109/65. Nurse thought this was very low. When I queried it with consultant he said it was because I am very fit. If it was 80/65 he would be worried. Today is a good day, yesterday I had blurred vision and lightheaded, nauseous and extreme fatigue, pains in my neck and lower back. I am left very confused and baffled.