I recently moved To Asheville, NC from Miami. Love it here! Finally set up with all new doctors, and everything seems to be going smoothly. However twice last month it was mentioned from my Neuro opthomologist, and rheumatologist that I probably didn’t really have GCA, just maybe PMR.
I was diagnosed clinically by a neuro opthomologist in October 2017 after being diagnosed with PMR, and having an Amaurosis Fugax incident. I had ESR 68 weight loss, jaw claudication.. was put on IV methyl prednisone and later 100 mg prednisone, followed by a stroke work up which was negative. I had 4 more Amaurosis Fugax incidents during those first weeks, even while on 100 mg prednisone.
I would love to think that I never had GCA, but is there any way to tell now? Doctors want me to taper quickly. I’ve learned from this site not to. I was thinking a second opinion from Duke Hospital 4 hours away, or maybe somewhere else. I’m currently on 20 mg prednisone, tapering has been decided by me, because of the move, visitors, life, etc.
I’m still active, no muscle aches. Walking, and hiking is a new hobby. I’m worried about more Amaurosis Fugax incidents, which I don’t see mentioned often on this site. Isnit really GCA?