I have just received a leaflet from Arthritis Research UK, and it is very informative. It does say that it usually takes 1-3 years to come off steroids altogether and that it isn't always possible to stop them completely and some people will need to be on a low dose for a long time. Also, it says that GCA is sometimes associated with PMR, and about 40-60% wit GCA may also have symptoms of PMR. As I don't really have pain and stiffness maybe that's why I haven't been referred to a Rheumy? It is a really good booklet, well worth the 3 weeks wait for it!