My doc. Has been convinced that my PMR has left me and the pain I have in my lower back and legs is due to the problems I have with my spine. Although I have been doubtful I think he may be right as it actually is different from how I was with PMR. So I have reduced to 4 and a half mg. From 16mg I have been very tired and of course if I have had a bad back day I have been terrified incase it is PMR flaring. Anyway can one of you experienced people tell me if 1mg a week is ok or do I need to slow down again as I have been doing for months when I thought I still suffered from the horrible condition. When my husband took steroids during his chemotherapy treatment he came off them, with advice, quite quickly. I’ve never had a positive blood test which, as others who haven’t, know how unsettling this is. I was diagnosed 4 years ago . Anyway I now have an appointment with a rheumatologist, the first one ever. I’ve waited months. My doctor says it’s worth going as he might help with my pain anyway. ( I had an MRI scan last year which showed various problems and have a history of bone probs. Two new hips, shoulder pain, broken bones taking ages to heal.) I feel in limbo and would love a positive diagnosis but I’m not alone in that am I?
I’m reducing a half mg every 6 days at the moment.