Hi, I am new here and find extraordinary comfort in reading the experiences and advice of fellow sufferers. I took the initial diagnosis of PMR very lightly, thought a few months on prednisone couldn't be all bad. Six months later I believe I have developed GCA, along with a lot of humility. I have been experiencing neck pain, increasing in intensity over The past three weeks. My doctor did an x-ray, chalked the pain up to some arthritis,had me up my prednisone to 20 mg and gave me pain medication for sleeping. The pain medication did nothing and it was only then that I discovered – having woken up nightly at 2 AM with excruciating pain for more than a week – that taking 5 mg of prednisone relieved the pain which no muscle relaxers could touch. So I believe I am dealing with GCA. I have to get back to the doctors – why is it always Friday afternoon when these decisions are made?
When the neck pain began I did not think it was related to the PMR, just to some strain or damage. However the intensity of the pain and the way it travels evenly divided up both sides of my skull and behind my ears is unlike anything I have ever experienced. I am a little bit scared and yet hate to sound like an alarmist. Thanks for reading this.