I hope you are having a good Bank Holiday weekend, just thought I'd check in and let you know how things are going, still anxiously awaiting my consultant appointment with the Rheumy at Reading after seeing Rod Hughes at Chertsey. I am currently reducing from
60mg Pred by 10mg a week...today I am on 20mg so should be on 10mg by my appointment on the 12th.
Hopefully this will enable them to get some sort of readings from my bloods, I can honestly say the reduction has been pretty awful, bad headaches and extremely fatigued, aches, shakes and pains and my hands are not behaving as they should so no intricate cross stitching or puzzle building to busy myself with even if I did them lol
I also seem to be swelling up more and more and the most annoying thing is my neck, I feel like I'm being strangled all the time but hoping this will go once the water has reduced. From what I gather these can be side effects of reduction?
So yesterday I managed to drag myself out with the family and meet up with some of my oldest school friends, they were a little shocked by my appearance but we had a fun afternoon laughing and reminiscing in the sunshine which was nice.
Anyway just to say thanks again for your continued support and advice, I have been silently watching your posts...I've tended to hide myself away as not really feeling very sociable at the moment so the forums have been a lifeline to the outside world.
Enjoy the rest of the weekend! X x