I was diagnosed with GCA in Sep 2015. I was on 60 mgs of pred for 6 weeks til my blood pressure sky rocketed, then it was dropped to 35 and told to keep reducing whatever. I was told never to go back up even if I got symptoms back. When the scalp tenderness returned and I got Jaw and Tongue pain when eating I was told its not the GCA and to keep reducing. I did for 6 weeks til I'd lost 9kg then went back up off my own back to clear symptoms. Also told my upper arm and thigh pain definitely cant be PMR. No alternative offered.
When I mentioned what I'd read on here I was told not to believe what I read on the internet. When I asked GP if I could see someone else he said there is no-one else I am seeing the best there is. When rheumy wrote to GP about change in meds it took 3 months for electronic letter to arrive.
I still get eye and temple pain and pain in back of head and other symptoms but have got down to 8mgs of pred. Rheumys reviewed my case in January without seeing me. Others seem to be seen a lot more often and have regular blood tests. I suppose it depends what health area you live in. Sorry to go on but I just wanted to get it off my chest.