I recently stumbled across this website while desperately searching for some explanation into PMR after my farther was diagnosed with it about 5 weeks ago following a night in A&E due to 10/10 pain around his hip & groin area. I believe that this group has provided my family with critical information that has helped us have a basic understanding of the condition (Something that has never been provided elsewhere)
August 2016 my 68 Y/O farther was three years into his deserved retirement when he began to suffer pain in both arms and hands. This led to frozen shoulder diagnosis and tennis elbow diagnoses which was treated with what my farther explained as a magic steroid injection. Post injections my farther would resume normal service for about four weeks at which point he would be a 9/10 pain score again in his arms and hands.
By December my farther had been diagnosed with R/A and was prescribed with MTX which was started in then first week of 2017.
Over the last five months my fathers health has detreated rapidly to the point were yesterday he cant get out of bed some days, requires support to get when he can, ans was stuck on the stairs for wo hours last night as he could not move any of his body due to pain and fatigue. As I started with five weeks ago he was diagnosed with PMR after a bad night that ended in A&E. He was prescribed 15ml Ped and informed that tis will reduce over weeks months. I think his ESR rate was around 28 at this point. Last week my father was admitted to hospital by the R/A nurse who was concerned over his condition, during the assessment his ESR rate was 52 double than @ the start of the 15ml Ped, which was decreased to 12ml 3 weeks after he started with 15ml
Apologise for the long post & I am not sure what I am looking for with this other than documenting the events for my own digestion. As with allot of the posters, the problem we have is that multiple professionals are providing analysis independently and we struggle to get straight answers from each during appointments
Would it be possible for him to not have R/A and just PMR or GCA based on the reaction to the steroid injections late 2016. If tis is the case I cant see why they haven't started him on a higher dose of Ped?
Current conditions like most,
Fatigue and pain to the point of non movement for 14 hours a day - Worse AM
Sweating heavily at night
Whole body pain - Worse in upper areas