Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,291 members • 38,017 posts

All posts for April 2016

Waiting for Rheumatologist appt

Still on 10mg as blood tests showed raised levels. Now waiting for Rheumatologist appt. Just wondered what happens at these appts ? Still not feeling well,...

Still on 10mg as blood tests showed raised levels. Now waiting for Rheumatologis...

jules1955

•8 years ago

5 Replies

GP and further blood test

Hi I've been diagnosed with PMG through a blood test last year. Started Steroids was feeling good again, I had asthma really quite bad and had to have a couple...

Hi I've been diagnosed with PMG through a blood test last year. Started Steroids...

linnypin1

•8 years ago

6 Replies

Spring Flu Virus

Hi everyone. It has been sometime since I posted, I was diagnosed with PMR/GCA in February 2011, Temporal Arthritis confirmed by Biopsy. A couple of bad flares...

Hi everyone. It has been sometime since I posted, I was diagnosed with PMR/GCA i...

Dorene

•8 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Should pred effect wear off?

I posted about my 'trial' with pred at the weekend and had loads of helpful comments. Three days in and the effect seems to be wearing off and shoulders and...

I posted about my 'trial' with pred at the weekend and had loads of helpful comm...

ariel1973

•8 years ago

14 Replies

Pred not working??

Hi all, would like some advice please. I've posted a few times before regarding my suspected PMR (even though I'm 45 yrs old). Last week I was given the coated...

Hi all, would like some advice please. I've posted a few times before regarding ...

Underlee

•8 years ago

5 Replies

EXTRA GCA (pred side effects)

I have only recently found this forum, and I must say that it is very, very helpful. So here goes-I have been taking steroids for about three months, I have...

I have only recently found this forum, and I must say that it is very, very help...

joyce39

•8 years ago

13 Replies

Betty1943

I have a longing to go to India. I am down to 2mgs of pred and doing (dare I say!) ok. I have had GCA since Sept. 2014, what does everyone think would value...

I have a longing to go to India. I am down to 2mgs of pred and doing (dare I sa...

betty1943

•8 years ago

13 Replies

How long do you start feeling better

Went back to the doctor this morning after looking at my blood result being all normal At last the new doctors is listen to me and has put me on 5mg of...

Went back to the doctor this morning after looking at my blood result being all...

Mistyscot

•8 years ago

12 Replies

Spasms in hands and odd cramp like weakness in legs

Hi, I'm new to this site so may have missed a post dealing with my issues. I was diagnosed with GCA mid February and after see rheumatology doctor mid March...

Hi, I'm new to this site so may have missed a post dealing with my issues. I was...

Pat46

•8 years ago

9 Replies

Fluctuating Prednisolone dose

Hi, I have been seeing my rheumy for over 2 years now and am down to 5 - 7 mg of Pred. We seem to be at loggerheads as to my use of Pred. I have a physical job...

Hi, I have been seeing my rheumy for over 2 years now and am down to 5 - 7 mg of...

horas

•8 years ago

14 Replies

PMR without prednisone?

I am a woman of 64years old, I got the diagnose PMR one month ago. My doctor says that I must begin with prednisone. I refuse. I am very well aware of the...

I am a woman of 64years old, I got the diagnose PMR one month ago. My doctor sa...

Bergsund

•8 years ago

40 Replies

GCA and Side Effects. Loperamide ( Imodium ) ???

After a lifetime of suffering from IBS. Long ago, Imodium became my go-to drug of choice. I take it frequently. After not using it for several days...this...

After a lifetime of suffering from IBS. Long ago, Imodium became my go-to drug o...

cjatthesea

•8 years ago

4 Replies

Expiry date of prednisolone

Just a quick query: does anyone know how accurate the expiry dates on prednisolone are? Doing my weekly allocation I have just seen that the pack of 1mg I...

Just a quick query: does anyone know how accurate the expiry dates on prednisolo...

maria40

•8 years ago

5 Replies

Helpful guideline from my Rheumy

For those of us who have tapered down to the single digits, the point at which our adrenal glands have to start functioning again, we can find ourselves quite...

For those of us who have tapered down to the single digits, the point at which o...

cdenoncourt

•8 years ago

15 Replies

REDUCING STEROIDS FOR POLYMYALGIA (PMR)

I have recently been diagnosed with Polymyalgia and started taking Prednisone. I have had 15mg for 3 weeks and my levels improved so now take 12.5mg. After 5...

I have recently been diagnosed with Polymyalgia and started taking Prednisone. I...

CarrieP

•8 years ago

16 Replies

Worried about seeing rheumy

I was diagnosed with PMR in January, and am one of the lucky ones who was completely pain free within 8 hours of starting pred. I had a massive row with my GP...

I was diagnosed with PMR in January, and am one of the lucky ones who was comple...

Mary63

•8 years ago

5 Replies

Blood test result

My blood test came back and said normal no further action if I put up my results could someone help me work them out as my red blood count is high Red blood...

My blood test came back and said normal no further action if I put up my result...

Mistyscot

•8 years ago

9 Replies

Mouth sores

Has anyone here developed mouth sores while on prednisone, I've been on 10 mil for over three months with no problems & now started to get some small rough...

Has anyone here developed mouth sores while on prednisone, I've been on 10 mil f...

Shastring

•8 years ago

12 Replies

applying for jobs with GCA?

It's looking highly likely I will receive a diagnosis of GCA + PMR. Of course this never comes at a good time for anyone but I'm trying to apply for new jobs,...

It's looking highly likely I will receive a diagnosis of GCA + PMR. Of course th...

CloudGazer6

•8 years ago

12 Replies

Peeing for Essex

Hi, my name is Sandy and a I am fairly new here. First of all, for the past 4 weeks I have found this site a lifeline and thank you for setting it up and all...

Hi, my name is Sandy and a I am fairly new here. First of all, for the past 4 we...

S4ndy

•8 years ago

18 Replies

Crp

Hi have just looked at results on line Could anyone tell me if 79 is high for Crp reading and could this be why I am getting sweats Thank you

Hi have just looked at results on line Could anyone tell me if 79 is high for C...

Rusty8

•8 years ago

11 Replies

Vertebrobasilar insufficiency

Hi all, Just to recap, I was diagnosed PMR/GCA September 2014, started on 60mg prednisolone- pain free within a day. Down to 5mg August 2015. CRP and ESR...

Hi all, Just to recap, I was diagnosed PMR/GCA September 2014, started on 60mg p...

Sandybo

•8 years ago

5 Replies

Night Sweats

Hi all, does anybody on the forum suffer from night sweats? I've been suffering from them for the past six weeks which appeared at the same time as my PMR...

Hi all, does anybody on the forum suffer from night sweats? I've been suffering ...

Underlee

•8 years ago

38 Replies

Pylomyalgiarheumatica

The clue is in the name. Probably better to be seen by a rheumatologist rather than a neurologist. Any opinions please?

The clue is in the name. Probably better to be seen by a rheumatologist rather t...

Shandon1

•8 years ago

5 Replies

Sertraline when to take

Hubby just picked up script for me after I talked to doctor on phone .,instructions 1 a day think when I spoke to her she said at night. At the moment I take...

Hubby just picked up script for me after I talked to doctor on phone .,instructi...

olive2709

•8 years ago

7 Replies

Pmr mainly in legs with some depression

Finding it very difficult to convince the neurologist that the numbness and pain in my legs might be connected to PMR. And maybe some depression too. Might be...

Finding it very difficult to convince the neurologist that the numbness and pain...

Shandon1

•8 years ago

10 Replies

Acupuncture?

I was diagnosed with PMR in 2013 after taking several trips to doctors and finally a Rheumatologist and put on a high dose of steroids. Like nearly everyone...

I was diagnosed with PMR in 2013 after taking several trips to doctors and final...

caz3333

•8 years ago

13 Replies

Many, many thanks to all on this forum

I would like to say a huge thank you to everyone here, for your generosity, frankness and advice. It has meant a great deal to me over the past few weeks...

I would like to say a huge thank you to everyone here, for your generosity, fran...

CloudGazer6

•8 years ago

7 Replies

Alendronic Acid

Hi, it would be great to get people's opinions please. My Dexa scan wasn't brilliant, I'm osteopenic, verging on osteoporosis in my spine 😕 My doctor has...

Hi, it would be great to get people's opinions please. My Dexa scan wasn't brill...

Angex05

•8 years ago

4 Replies

Neuropathy pmr depresion

I am seeing my consultant at neuropathy tomorrow. Severe depression at the moment. Is there a link between pmr neuropathy and depression? Hate anti...

I am seeing my consultant at neuropathy tomorrow. Severe depression at the momen...

Shandon1

•8 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2016

Waiting for Rheumatologist appt

GP and further blood test

Spring Flu Virus

Should pred effect wear off?

Pred not working??

EXTRA GCA (pred side effects)

Betty1943

How long do you start feeling better

Spasms in hands and odd cramp like weakness in legs

Fluctuating Prednisolone dose

PMR without prednisone?

GCA and Side Effects. Loperamide ( Imodium ) ???

Expiry date of prednisolone

Helpful guideline from my Rheumy

REDUCING STEROIDS FOR POLYMYALGIA (PMR)

Worried about seeing rheumy

Blood test result

Mouth sores

applying for jobs with GCA?

Peeing for Essex

Crp

Vertebrobasilar insufficiency

Night Sweats

Pylomyalgiarheumatica

Sertraline when to take

Pmr mainly in legs with some depression

Acupuncture?

Many, many thanks to all on this forum

Alendronic Acid

Neuropathy pmr depresion

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive