I was diagnosed with PMR in January, and am one of the lucky ones who was completely pain free within 8 hours of starting pred. I had a massive row with my GP who did not think I had PMR, because my ESR is not raised, and my CRP is only 11 or 12. I then went to Australia for 3 weeks and on my return saw another Gp, who requested I reduce from 20mg to 15mg which I did with no problem symptomatically.
She made a request for an urgent rheumy appointment, saying that she wanted his advice about a quick taper. Of course the urgent appointment has taken 6 weeks, and I am due to go on Wednesday.
Last week when I was running out of tablets I wrote to the second GP requesting another prescription and suggested that I reduce to 14mg if that was OK with her. i received no reply but a script for 1mg tablets was dispensed, so I am presuming she was in agreement.
I have a dread that this Rheumy is going to say that I don't have PMR and reduce me fast. Shall I reduce by another mg to show that i am willing to taper?
What shall I say if he says that I cannot have PMR with near normal bloods? I know from this forum that ?20% of people do not have raised ESR or CRP. Is that written down/ proven anywhere? so I could take some evidence with me.
Of course I may get a completely different reaction from him, and be worrying unnecessarily.
Do any of you have advice about tapering from the dose I am on? I think I remember reading on this forum that more than 1% might be problematic. So to go from 14mg to 10 might be difficult.