Pmr mainly in legs with some depression

[Shandon1]

Finding it very difficult to convince the neurologist that the numbness and pain in my legs might be connected to PMR. And maybe some depression too. Might be referred now to rheumology consultant. Feel a bit better for increasing pred dose to 4mg from 3mg. They done some blood tests after well over a year.

[PMRpro Ambassador]

Depression possibly - numbness would be unusual from PMR but there are other reasons for it and I do know several people with the problem.

If a mg or 2 more makes you feel a lot better - at that sort of dose I wouldn't have thought it was much of a problem. My doctors say "You need what you need". Thank goodness!

[MaryWR]

I too have pins and needles, numbness and then pain in my legs.  The rheumy doesn't think it's PMR and I think she may possibly be right.  I have had an MRI in case of lumbar stenosis but nothing there.  Is yours worse when you are standing or walking - mine is and I am beginning to think about Meralgia paraesthetica which fits my symptoms closely and could be explained by the stone that I have added to an already overweight body.  Look up the symptoms and see what you think.  Claudication is another avenue to explore.  Good luck

[NursePeggy in reply to MaryWR]

I also have pins and needles in my legs and feet, some numbness in my feet.  The pins and needles is sometimes so bad it becomes painful.  It also gets worse on standing and walking.  I have been on 7 1/2 mg pred for 5 weeks.   Have had this problem most of the time i have been on pred, with the occasional day when I hardly notice it.  I thought it was side effects from the pred, a beta blocker and omeprazole, which all list this sort of side effect.  Also possibly a magnesium deficiency.   I have just bought a new magnesium supplement to try, which does not give you a runny tummy.  I am hoping that might make a difference !

I have lost 1 1/2 stone in the 19 months i have had PMR.  Wish I could put some of it back on again !

[Shandon1 in reply to MaryWR]

I have some feet numbness when sitting. But I am not able to do a long walk. Even over a short distance the pain and numbness can be severe, around 8 on a 10 scale. Going to really look at my food. More berries!

[trish29]

Good Morning Shandon1, I so hope you find a Rheumatologist as Good and kind and caring as mine ..I have had a lot of issues with my legs,feet and Knee. I have been having Bowen Therapy to help as well. Some of it is water retention due to my medication and as I have had PMR for nearly 13 years then I have tried every trick in the Book to help to try and get down/0ff the steroids ..I also think that my Blood Pressure tablets aggravate the fluid problem as well .As I was getting Desperate and didn't have an appointment until the end of May I decided to e-mail him and explain my problem.    I was gobsmacked at 8:15am of Monday morning this week when my Consultant  e/mailed me and said he would fit me in at the end of his clinic on Wednesday (yesterday) He took fluid out of my knee and gave me a Depomedrone injection into my knee.. I have had my first Pain Free night for a long time .After neglect for many years from previous Rheumatologists I would like to say to Dr R Hughes ..Thank you for giving me some relief from my pain ,even if it might be short lived and Thank you for Listening. You see there Are good Rheumatologists out there ..Best wishes to you Shandon1 . I hope you get some relief soon ..trish 29

[PMRpro Ambassador in reply to trish29]

Tell you - RH needs to be cloned...

[Shandon1 in reply to PMRpro]

RH? Please explain.

[PMRpro Ambassador in reply to Shandon1]

Dr R Hughes, as mentioned by Trish. We've said before that such a good PMR/GCA rheumy needs to be cloned.

[Shandon1 in reply to trish29]

Thanks Trish.

[trish29]

Hello PMRpro ..I agree in some ways but then it would be Difficult to get an appointment. He is the only person that makes me feel comfortable with myself .This condition goes on forever but with him by my side I will keep on fighting ..Hope you are getting on OK ..We are all fighters on this Forum and Celtic is amazing and does so much to run our Surrey meeting house.Tuesdays meeting was very interesting and it was nice to catch up with my PMR friends ..best wishes Trish 29