Hi, I'm new to this site so may have missed a post dealing with my issues. I was diagnosed with GCA mid February and after see rheumatology doctor mid March haven't really had a good experience with my local hospital but that isn't really what I want to post about.
After being of prednisone for a couple of weeks I started having spasms in my hands, resulting in fingers crossing over each other and effectively stopping me being able to do anything until they went back into place. Along with this I have had a few occasions when something peculiar has happened with first one leg the both. It's as though my ankle is going to cramp, then my leg seems go very weak. I need to stand up and keep my weight firmly on my feet because if I relax it at all my lower leg goes into spasm. I had a very scary (not to say embarrassing) session like this in the centre on Leeds last week, when I was stuck In the street unable to move for about 10/15 minutes.
Has anyone else encountered this sort of thing? Sorry if I sound a bit daft and I hope someone can give me a bit of advice. I am having a temporal biopsy next week and at last have another rheumatology appointment 3 days later.
I have just reduced my prednisone dose from 60 mg to 50 mg, I was also taking alendronic 70 mg once a week for 4 weeks
Anyone else had anything like this?