I was diagnosed with PMR in 2013 after taking several trips to doctors and finally a Rheumatologist and put on a high dose of steroids. Like nearly everyone else on this site my sumptoms seemed to disappear overnight. Have had about 4 or 5 flare ups and trips back to doctor to increase steroids again then slowly reduce which has always worked.
However since 2 Jan this year my flare up has not been managed by the steroids, increased pain and stiffness in my shoulders, neck and arms. After seeing another Rheumatologist (had to go private) otherwise would have had a 3 month wait to even see one on NHS he did loads of blood tests, x.rays and Mri. Results have come back with ACPA reading of over 300 and another one very high can't remember the name of blood test but it's been confirmed I have Rheumatoid Arthiritis not PMR. Now been prescribed methotrexate and folic acid with several blood tests and chest X-ray again in a few months.
I have only taken the methotrexate twice (take it once a week) so it's early days but the pain in my shoulders and neck just never goes away. Not just stiff but real intense pain, can't get dressed easily or move around very well. I have tried all the painkillers including tramadol and they all make me feel sick and even more unwell.
Can anyone advise if they have used acupuncture? To manage pain at all. I am wondering if it is available on NHS if all the normal painkilling remedies just don't suit a patient as living with this chronic pain and the fatigue is getting me down. I am going to speak to my gp as soon as possible but thought I would ask this forum first.
For the first time in 3 years I have had to take this week off work sick (thankfully only work 25 hrs) due to this dreadful pain which also affects my hands and feet but can cope with that better.
I would welcome any comments at all, many thanks.