Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2016

Post by oldjockey

Hello everyone, You may have seen a post in the last few days promoting a clinic in Switzerland. I've investigated the post and this is not from a genuine...

Hello everyone, You may have seen a post in the last few days promoting a clinic...

Polywotsit

PMRGCAuk team member•8 years ago

13 Replies

Normal blood what now?

Just came home from Dr. Yesterdays blood tests perfectly normal, sedrate, protein all that he ordered normal. IHe went on to explain that even though I'm on...

Just came home from Dr. Yesterdays blood tests perfectly normal, sedrate, protei...

Shastring

•8 years ago

14 Replies

Coated or uncoated

Several years ago I was changed from coated Pred to uncoated, I was told they were not cost effective . Over the years my digestive system has been getting...

Several years ago I was changed from coated Pred to uncoated, I was told they we...

bowler

•8 years ago

8 Replies

Want to take advantage of all our features? Just log in!

Prednisolone soluble or plain

Hello, I have been prescribed and have been taking soluble prednisolone for past few weeks. However pharmacist claims that they are experiencing delay in...

Hello, I have been prescribed and have been taking soluble prednisolone for past...

Maryan-Fred

•8 years ago

1 Reply

Leflunomide DMARD drug

Quick question. Been to my lovely rheumy today. She has suggested I try Leflunomide (DMARD). I would be interested to hear your comments about any experiences...

Quick question. Been to my lovely rheumy today. She has suggested I try Leflunom...

Gosingen

•8 years ago

14 Replies

Alternative therapy update

Wow, nearly three weeks since my last update! I've been receiving a light therapy treatment weekly, and seem to be doing well. ( http://bioflexlaser.com/ for...

Wow, nearly three weeks since my last update! I've been receiving a light thera...

HeronNS

•8 years ago

41 Replies

PMRGCAuk Meetings in Kent in April 2016

The following Meet Ups take place in Kent/East Sussex this month. We hope you will be able to come along to one of them. If you have any questions before you...

The following Meet Ups take place in Kent/East Sussex this month. We hope you wi...

pennyw

Administrator•8 years ago

1 Reply

Information on shingles

im on steroids for PMR and have shingles. I'm feeling ill, cold have no energy. Does anyone have advice please ?

im on steroids for PMR and have shingles. I'm feeling ill, cold have no energy. ...

Chynnamoss

•8 years ago

8 Replies

Flare up

So since the tapering down this past Thursday I started getting achy on Sat. but nothing to bad, by yesterday couldnt walk & pain in neck began getting worse,...

So since the tapering down this past Thursday I started getting achy on Sat. but...

Shastring

•8 years ago

16 Replies

Blood test on Thursday

I going for a other blood test on thursday , I have been sore for the past three years and had so many blood tests to try and find out why I'm so sore the...

I going for a other blood test on thursday , I have been sore for the past three...

Mistyscot

•8 years ago

6 Replies

Elimination diet

Hi Pollyanna I recently started a wheat/gluten free diet and the myofascial pain around my rib cage, which had been quite severe for a number of years,...

Hi Pollyanna I recently started a wheat/gluten free diet and the myofascial pain...

54jen

•8 years ago

2 Replies

Elimination diets, do they help PMR

I am wondering if anyone has been helped with their PMR symptoms by trying an elimination diet. My son has Crohns (another autoimmune disorder) and has...

I am wondering if anyone has been helped with their PMR symptoms by trying an el...

Pollyanna16

•8 years ago

17 Replies

I've got sciatica

Why doesn't sciatica respond to medication. I had it a couple of years ago it was the same then no matter what painkillers the doc gave me they didn't work. I...

Why doesn't sciatica respond to medication. I had it a couple of years ago it wa...

kingharold11

•8 years ago

33 Replies

Stenosis

Could anybody tell me if taking steroids for pmr would it also help relieve pain from having spine problems and hip problems that have been there for years ...

Could anybody tell me if taking steroids for pmr would it also help relieve pain...

Rusty8

•8 years ago

6 Replies

Confused with Dr. Tapering meds

Today I had my follow up with new Rheumotologist. Since he came on my case after first Dr started me on 20mil of pred he now want to start all over by lowering...

Today I had my follow up with new Rheumotologist. Since he came on my case after...

Shastring

•8 years ago

38 Replies

Massage and PMR

Hi all, I'm just wondering on people's thoughts regarding massage? My legs are very stiff in the morning when I wake up and I'm wondering whether a massage...

Hi all, I'm just wondering on people's thoughts regarding massage? My legs are v...

Underlee

•8 years ago

24 Replies

GCA flare?

I am concerned that I might be experiencing a GCA flare. Diagnosed positive biopsy July 2013, reduced down to 5mg by May 2015 had headaches and neck pain in...

I am concerned that I might be experiencing a GCA flare. Diagnosed positive biop...

Mythemm

•8 years ago

4 Replies

Red heads?

Hi everyone, it is so great to have this forum, PMR is such a lonely journey as it is so misunderstood by non sufferers. I have red hair, (now faded!) and read...

Hi everyone, it is so great to have this forum, PMR is such a lonely journey as ...

Hidden

•8 years ago

22 Replies

Any NYC PMR sufferers out there?

So happy to have found this site, but quickly realized that most of the posters are from the UK, Canada or Australia! Are there any of you from New York City...

So happy to have found this site, but quickly realized that most of the posters ...

dnitzy

•8 years ago

16 Replies

Rheumatologist

I have never seen a Rheumatologist but I have had PMR for 27 months and was down to 6mg pred i had bad chest infection and Doctor put pred up to 30mg for 1...

I have never seen a Rheumatologist but I have had PMR for 27 months and was down...

northants

•8 years ago

2 Replies

That's it, I'm done working

Just a quick update to say I have just retired on ill health grounds due to PMR. Still on 13mg of steroids after starting at 15mg 2 years ago, have been up and...

Just a quick update to say I have just retired on ill health grounds due to PMR....

Griggser

•8 years ago

14 Replies

Rheumy's

Just been reading the posts about the difficulties in finding a good Rheumy. I saw mine today for the second time since diagnosis, last October. I can't praise...

Just been reading the posts about the difficulties in finding a good Rheumy. I s...

Pebble-Sue55

•8 years ago

9 Replies

tired

The more I reduce my preds I am down to 5mg from 15 after over 17 months due to flares I am grinding to a halt, no pain other than what you expect from PMR...

The more I reduce my preds I am down to 5mg from 15 after over 17 months due to...

granelliheywood

•8 years ago

12 Replies

Blood test frequency

How often do other PMR sufferers have blood tests? Should I request them or wait for the doctor to ask me to have one? I haven't had seen a doctor or had a...

How often do other PMR sufferers have blood tests? Should I request them or wait...

margiebell4

•8 years ago

21 Replies

Dental work, while on steroids

I am a year into GCA and after one flare am back to reducing from 10 mg. Yesterday I thought I had lost a filling but it turns out I have lost the entire back...

I am a year into GCA and after one flare am back to reducing from 10 mg. Yesterd...

allykat

•8 years ago

17 Replies

New Research from USA about drugs and GCA-- some of this s quite technical but a lay person should be able to follow the gist.

Tocilizumab plus prednisolone was twice as effective as placebo plus prednisolone at inducing complete remission in patients with giant cell arteritis (GCA),...

Tocilizumab plus prednisolone was twice as effective as placebo plus prednisolon...

Judigardener

•8 years ago

4 Replies

PMR and Colitis

Hi, does anyone one have experience of PMR and colitis? I've been diagnosed with PMR with pain in my legs and arms. I had a petscan recently that showed...

Hi, does anyone one have experience of PMR and colitis? I've been diagnosed with...

Underlee

•8 years ago

6 Replies

GCA specialists (including vascular surgeons) in Surrey?

I'm new to this issue of GCA, my rheumatologist isn't much help, so I'm thinking of going to see someone specialised in this (if they exist) as for the past...

I'm new to this issue of GCA, my rheumatologist isn't much help, so I'm thinking...

Purpletop

•8 years ago

22 Replies

prednisolone and hemmoroids

Since being on Preds my hemmoroids went away but now that I am down to 5mg they have returned don't know wether to laugh or cry,I am tempted to increase dosage...

Since being on Preds my hemmoroids went away but now that I am down to 5mg they ...

granelliheywood

•8 years ago

8 Replies

~Glory be - low then high blood pressure whilst tapering?

Any experiences on the following - much appreciated in advance. Reducing hydrocortisone a fraction further as requested by Rheumy from 15mg (equivalent to 3 mg...

Any experiences on the following - much appreciated in advance. Reducing hydroco...

Megams

•8 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2016

Post by oldjockey

Normal blood what now?

Coated or uncoated

Prednisolone soluble or plain

Leflunomide DMARD drug

Alternative therapy update

PMRGCAuk Meetings in Kent in April 2016

Information on shingles

Flare up

Blood test on Thursday

Elimination diet

Elimination diets, do they help PMR

I've got sciatica

Stenosis

Confused with Dr. Tapering meds

Massage and PMR

GCA flare?

Red heads?

Any NYC PMR sufferers out there?

Rheumatologist

That's it, I'm done working

Rheumy's

tired

Blood test frequency

Dental work, while on steroids

New Research from USA about drugs and GCA-- some of this s quite technical but a lay person should be able to follow the gist.

PMR and Colitis

GCA specialists (including vascular surgeons) in Surrey?

prednisolone and hemmoroids

~Glory be - low then high blood pressure whilst tapering?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive