I would like to say a huge thank you to everyone here, for your generosity, frankness and advice. It has meant a great deal to me over the past few weeks whilst experiencing what this forum has let me see is the ‘normal’ of waiting to find out what will come next for me. Like so many others here I became unwell very suddenly - a few weeks ago, almost on my 51st birthday - and went from a very busy work and social life to being unable to stand for long enough to prepare a meal or get dressed, with severe pain, unable to use my hands, a complete inability to multitask and visual problems. I didn’t realise that the various sight problems I was having then were very worrying and was lucky that a specialist eye unit took them seriously. My GPs’ best attempts to make an ‘urgent’ referral took 9 weeks to come through but I am now about to have a TAB, and I’m on 60mg prednisolone following a brief hospital admission.
My specialist is working through the various possibilities and is very open about the diagnostic difficulties presented by my age, seronegative bloods, possible additional inflammatory condition and the overlay of multiple chest and eye infections whilst I was waiting to be seen. I was very interested to read here that there is a potential suggestion about looking at symptom presentation in the younger ages with PMR/GCA.
So, thank you - in particular to the people who have written about their return to work. I need to work full time and have little idea at this early stage what the next few weeks and months will bring but your encouragement and openness about your experiences has been invaluable to me.
Thank you too to the person (I’m sorry I didn’t note who you were) who named the PMR ‘lurch’. I am now able to laugh whenever I topple over.