Hi I've been diagnosed with PMG through a blood test last year. Started Steroids was feeling good again, I had asthma really quite bad and had to have a couple of doses of antibiotics plus 8 steroids per day for 7 days. When I had recovered from the chest infections and the asthma was back under control my GP said we ought to get you off the steroids and get another blood test sorted out, so I'm coming down to 3 (5g ) a day from 4 (5g) a day and I can't lift an empty kettle to refill it, it takes me an hour in pain to get dressed and I've started taking Ibuprofen for the pain, which I've read on the forum isn't good. So looks like I can't have a blood test done whilst on the steroids but trying to come down off them is like a living hell, even my knuckle joints are red and swollen, very painful, feel I can't say to my GP I need to stay on steroids because at least I did feel like I had a life when I was on a higher dose. Any comments would be great. I'm glad I came across this site it's very interesting to read about other people who have the same nasty disease.
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