Essex area?

[Lagathavikings]

Hi everyone xx just a quick question.. Are there any pbc/aih sufferers in the Essex area?? Don't want to know exact area just wondering if anyone near me in same boat. Thanks in advance xx love and hugs

[butterflyEi]

If you go to the PBC Foundation's web site, in the members section look for the Bear Facts Magazine. There is a list of local volunteers you may find a group in Essex that you can be in touch with - at the moment virtually of course.

😊

[Lagathavikings in reply to butterflyEi]

Hi. I looked. Nothing in Essex but think there was one in Kent. Not a million miles xx thanks for advice xx

[YvonneGS]

Are you asking about Essex, Ontario, Canada or in England? It would help to get more detail to avoid confusion as we are a worldwide group. 😉

[Lagathavikings in reply to YvonneGS]

England xx

[sleepytink]

Barnet, not t million miles away

[Lagathavikings in reply to sleepytink]

Hello in Barnet. Know it a little.. Used to live in Enfield xx looking at your posts you have fibro?? I have pbc and aih. Just all new to me the last few weeks. 😔. Been such a shock. I take it you don't have the same hun?? With such a rare condition its so hard to find people in same boat near!!! Hope your condition is stable xx lots of hugs traci x

[sleepytink]

Hi hun, I have pbc, me , fibro, shrogens, raynauds and have reached the decision if I saw more specialists no doubt id get more diagnoses, in reality I just have broken immune system , I was diagnosed with PBC coming up for 8 years ago and have to say it was a huge shock, my specialist was an idiot and scared the living daylights out of us! Took me years to get over their scare mongering , many people live long and good lives and die with the disease old and having lived well, so please dont get too bogged down with the negatves, each persons journey is unique, im under the Royal Free where are you at?

[Lagathavikings in reply to sleepytink]

Oh hun... You know how I'm feeling don't you xx I'm under basildon hospital in Essex but feel it's a bit inferior to a London hospital. Think that's my mindset at moment. Have lots of negative thoughts 😢. I have a partner Andrew who is incredible but feels helpless. He's going through it too of course without having the actual thing. Have u got a partner/husband? Xxx

[Lagathavikings in reply to Lagathavikings]

Ps. Thankyou for sharing all your conditions with me xx 😘

[sleepytink in reply to Lagathavikings]

hi honey Im lucky to have a great partner too, if you're on Facebook and went to chat there feel free to find me staceyphillips , 8 years done the line I hope I might be able to allay some of your fears .

[Lagathavikings in reply to sleepytink]

Stacey that would be lovely to find you on Facebook. I so appreciate it xx will look in a bit x traci x

[Lagathavikings in reply to sleepytink]

I've looked. Can't find you. Try mine. Traci joules.. Xx thankyou x