Tired

[Purdy2017]

Well at worst soon as it hits around 1,30 14,00 struggling to keep my eyes opened it's horrible does anyone else struggle with this time of day ??

[kimphoebe]

Yes I start getting tired around 12 ish and try to fight it, but in the end I give in and have to sleep.

[Hidden]

On a bad day I can start to feel drained at around midday, it’s the worst feeling isn’t it! I just feel like all the energy and strength has drained out of my legs and arms and that if I don’t have a lie down I will fall down instead. After a couple of hours lying down I start to feel a bit better again. Those days happen a few times a month at the moment, but it’s just the suddenness of it, I have 2 children 10yrs and 2 yrs and work from home at the moment so it really isn’t ideal. On better days I just feel like I’m not 100%, and could have a nap at any time. It’s a horrible thing to have.

[Purdy2017 in reply to Hidden]

Hi yes thank you for your reply yes it is horrible I fill like my brain is also so lazy to it just wonts to switch of

[butterflyEi]

Before I was diagnosed and started URSO that was always "my time of day" to nod off. I was in an office on my own and I remember crashing one afternoon but my boss came in, I came to with a start and pretended I was looking for something under the desk! Fortunately for me this phase passed however some time later the itch has come and although medicated sometimes it can be very lowering.

[Purdy2017 in reply to butterflyEi]

Thankyou for your reply yes I wish I could just pull the plug no matter how much sleep you have it does not seem to matter its horrible

[Larrysgirl]

For me it's usually around 3ish... Caffeine, lots of caffeine

[IAmTheGlue]

Yes, and I just take a nap in the afternoon. I cannot stay awake an entire day regardless of the amount of caffeine I use.

I do not work outside the home but also I can’t see how I could.... I usually have to lay down around noon to two and sometimes around 6pm. I’m in early cirrhosis and I think it’s just part of the disease.

[Purdy2017 in reply to IAmTheGlue]

Yes I agree it doesn't matter how you try and stop it its not happening trying to go against it is not a good idea keep safe thankyou for your reply

[Nellies47]

Hi

Yea and when it hit I just have to lie down. I'm newly diagnosed. Going to see liver specialist on Monday.

I also have hypothyroidism, dry eyes, chronic sinusitis and itch.

Sorry to moan but it has helped to read these and see I'm not alone

😀

[Purdy2017 in reply to Nellies47]

Sorry to hear that yes that's all you can do apart from when your at work

[Nellies47 in reply to Purdy2017]

Yes and at work I drink too much coffee which still doesn't take the edge of the tiredness. Does anyone else find they eat too much when fatigued. I'm gaining weight because I eat to stay awake.

[fudge13]

Hi there, my worst symptom is exhaustion. I was diagnosed with PBC at age 40 , I’m now 52 . My fatigue is becoming so much worse. I’m really struggling and don’t know if I can keep working for much longer . It’s so difficult. Try and rest when you can.

Best wishes to you

[Nellies47 in reply to fudge13]

Thanks. Yes understood rr work. I'm working a 4 day week. I'm a nurse and find it hard.Saw the liver specialist today for 1st time.

Just wonder is it usual to not be started on meds. Told I def have PBC , have positive AMA etc and my GGT and ALT are high but that my ALP is normal so I don't need meds.

It's great if I don't need meds but I'm worried that I should to slow the progress.

Thank you

[Purdy2017 in reply to Nellies47]

Hi yes you need to go on meds to slow the progression down I've never heard of that before I would question it kind regards

[Nellies47 in reply to Purdy2017]

Hi.Thanks for the reply. Should I look for second opinion.

It's so new to me I'm lost.

[ninjagirlwebb in reply to Nellies47]

It doesn't hurt to get a second opinion. Believe urso can help normalized your elevated liver enzymes.

[Purdy2017 in reply to Nellies47]

Yes defanatly I would

[Nellies47 in reply to Purdy2017]

Thanks so much. I have booked ph consultant with GP re same.Anyone here on this site from Ireland and can recommend a good liver specialist.

Thanks everyone ☺

[Purdy2017 in reply to Nellies47]

Hope it all works out for you and you get something sorted best wishes

[Nellies47 in reply to Purdy2017]

Thank you. You too

[fudge13 in reply to Nellies47]

Hi there, I think you should definitely be in medication. Why don’t you contact the PBC Foundation for advice, they’re great at giving up to date information. Good luck

[Nellies47 in reply to fudge13]

Hi Thanks for reply. I contacted my gp. She also feels I should be on medication. She has referred me to a different liver specialist.

So will see. No harm to have second option.

Nelly

[Purdy2017 in reply to Nellies47]

I'm really pleased I'm glad you are being referred and hopefully get sorted x

[Nellies47 in reply to Purdy2017]

Yes thanks.

[Purdy2017 in reply to fudge13]

Hi I'm sorry to hear your struggling yes it's horrible I dont no how long I will be carrying on with work I work four days as a support worker and struggle kind regards