I was dx'd Stage 1 in 2001 via biopsy; Stage 2 in 2011 via biopsy; Stage 3 in Sept. 2017 via Elastography.
Am experiencing a slightly, only slightly, nausea at various times not associated with eating and/or drinking liquids than I ever did in the last two stages. I do have irritable bowel syndrome with both constipation and diarrhea as one of my other many ailments, and it usually kicked off by something I ingest, either solid foods or liquids. Occasionally it begins on "its own".
This "new" nausea feeling is solely based on its being perpetuated singly. At "odd" times, for me.
I only have had right upper quadrant pain just prior to being diagnosed in 2001; never to this date afterward. I suffer itching only at night and it is not all that frequent. So I really have not had many of the symptoms others with PBC are suffering, i.e. esophageal varices, ascities, or more.
I am a female 150 lbs.
I have been on Ursodiol 300 mg, 2 in a.m., 1 in p.m. for 17 years. I will take that back a bit: Was on 4 a day when I was 50 lbs. heavier, years 2001 to middle of 2016. Then cut back middle of 2016 to present to 3 a day.
Please respond in this venue if there are others out there who are experiencing this little phenomenon.
Kathleen in Ohio, age 73