mitochondrial antibody

[Yankeerose3]

What does it mean when the mitochondrial antibody result is 66.1?

[gwillistexas]

Mine was 128🤭. My test shows <20 is normal.

[Yankeerose3 in reply to gwillistexas]

So, I wonder what that means?

[gwillistexas in reply to Yankeerose3]

It is a definite marker for PBC. I was diagnosed with high AMA & elevated ALP.

[gwillistexas in reply to Yankeerose3]

It is Antimitochondrial...have you by chance researched it?

[Yankeerose3 in reply to gwillistexas]

No. Not yet

[gwillistexas in reply to Yankeerose3]

But not everyone with positive AMA M2 alone, has PBC. Sorry , should have said that in the beginning. 😊

[Yankeerose3 in reply to gwillistexas]

I'm wondering about AIH that some have along with PBC

[gwillistexas in reply to Yankeerose3]

I was tested in the beginning & so far that is negative.

[Yankeerose3 in reply to gwillistexas]

Is there a special blood work that's done? Or is it included when liver blood test are requested

[gwillistexas in reply to Yankeerose3]

Yankeerose3...special test. My dr ran AMA & ANA

[Angel_b]

Hi yankeerose

Have you joined the pbc foundation? Its free to join and has a compendium which covers everything pbc related.

AMA-m2 is usually ( although not always) found with pbc. There is no correlation between levels of AMA and disease progression so doctors don’t often check the level after diagnosis as it doesn’t really matter how high or low it is.

AIH, is usually suspected if ANA or anti-smooth muscle is detected and a biopsy would be required to get a diagnosis. If you have any concerns then you should speak to your doctor about this.

Try not to worry too much. Sometimes we learn too much from google and stress doesn’t agree with autoimmune conditions. Enjoy the holidays.

[Yankeerose3]

A.. Thank you. I will be going to my GI Dr next Thursday. One week from today... I hope you enjoy the holidays too

[Angel_b in reply to Yankeerose3]

Good luck. I hope it goes well. Take a list of questions with you as it’s too easy to forget everything once your in there.

[Yankeerose3 in reply to Angel_b]

Thank you.... Any suggestions on what questions to ask?